Good morning and these burning legs need to tone it down (not to mention the lovely and always delightful predhead shakes)!
I hope everyone is having a pleasant Sunday morning, I have just finished a lovely bowl of greek yogurt with strawberries and my first cup of Java for this morning...(No worries I'll be moving on to cup deux shortly...) After a semi-decent night sleep, I wish I could say that I am feeling a bit more refreshed and energetic, but that is not the case... Nonetheless I was still able to get up and out of bed (which is always a plus!) and come down stairs for my Sunday morning ritual with my Cup of Coffee and the Sunday Newspaper! As I was maneuvering around the kitchen, I couldn't help but feel as if I were in some sort of twisted obstacle course, as each chair, counter's edge and kitchen table seemed to dodge out in front of me, causing me to bob and weave my way around them (in my not-so-graceful manner) to get to my giant bag of coffee down the hall...All of this, just to get to my coffee grounds... And I had not even began the process of brewing my Java! As I was maneuvering my way across the kitchen, I had to crack a smile and laugh, thinking about how each aspect of my life has become more of an obstacle (especially when my Lupus is flaring/when I'm a predhead!)...Even common place items that just seem to merely exist to most others, can be a major burden for someone battling the
fatigue, and aches and pains of a chronic illness...So today, I'd like to take you all through the CHRONICLYsILLy Obstacle course, that I face each day! (Disclaimer: Course varies based on daily activities, energy levels, and joint pain/stiffness!)
Obstacle 1: Getting out of bed- This is usually my first obstacle of the morning... Upon waking it is always interesting to see what new aches and pains have found their way through my body during the night, once I am able to sit up (that' the easy part!) I have to hurdle out of my bed... Mind you my bed is not high nor low, just a regular twin sized bed... That can, on my flare days, take me about 20 minutes to conquer... But with some twerking and tweaking, a little lifting and shifting of my body...I am finally out of bed. And now...it's on the the next one...
Obstacle 2: The Stairs (cue evil theme song music)- To most people, stairs are just a minor inconvenience in their day, but they can go up and down at their leisure without thinking much about it at all...However, once I have gotten out of bed, and moved onward to the top of the stairs... My thoughts are," Are you kidding me? Oh I get it, it's a joke...wait it's not...Oh F*ck! (I apologize for the language I try to keep it PG 13 around here, but sometimes they just don't do justice...)" So Now, as I stare down the flight of stairs that lay ahead of me, I am debating how I am going to make my way down, I'm thinking of heading down on my Bum...One step at a time and about 10 minutes later I am down stairs! HA! Take that stairs...I'm the stair master (Yea right...)
Obstacle 3-5: Coffee/breakfast making- Now we move on to the obstacle course that is my kitchen. As I mentioned above just to get down the hall to the pantry I must maneuver my way around each and every chair, counter's edge and table that intrudes my path to my coffee grounds (My coffee is like the light at the end of the tunnel... the treasure at the end of a treasure hunt...) Finally the grounds are secured, and I make my way back to the kitchen where breakfast making commences...Usually it is just some yogurt and fresh fruit, as I cannot fathom making eggs (even though I love them...) and wasting those precious spoons(this only goes for my flare days however, If I am feeling well...Egg white omlettes for all!)
Obstacle 6: Now Obstacle 6, is more of a figurative one in my day, What to do/not to do...That is the question! Deciding what it is I and am capable of doing/accomplishing any given day. (This varies greatly, sometimes even from day to day...) Well today, I will head to the pharmacy to pick up my Cellcept as I have just received a call that it is ready! Uh-oh! That means...
Obstacle 7-8: Parking Lots and Shopping Carts: The parking lot presents its own set of difficutlies...To use my handicapp parking (which I have noticed some only seem to have because their handicapp is that they are uncapable of parking their car...) or to park out of the way for a quick get away upon my exit...Today, I am not in the mood to battle the 78 year old grandma that seems quite adament about getting the last handicapp spot, so I find myself weaving around moving and parked vehicles alike... and I know what lies ahead...The dreaded shopping carts...If you don't recall, last time I came to fill a prescription I was not quick enough to dodge a shopping carting-head down texter and found myself leaving with a huge bruise (that is still healing and a lovely shade of purple) as well as a bump on my right hip...Today I will have to bring my A game to defeat the shopping carts: Public Lupie Enemy numero uno!
Obstacle 9: Standing in Line- Now your probably thinking, she's not serious (well All of my lupies know I am dead serious) Because lately, on my flare days, standing for pro longed periods of time (greater than 10 minutes) seems to trigger my legs to turn a lovely shade of bright red, with purple lace like patterns running through them, burning and sweltering...(This is one of my least favorite obstacles) But luckily, it is usually not too long of a wait to obtain and secure the prescription and I am off to bob and weave some more shopping carts and aimless wanderers that endanger a lupie's well being!
Obstacle 10- Return home and rest: This may seem like a no brainer, but I'm as stubborn as they come and I do not always feel like resting and laying around (even when I'm feeling less than stellar...) So this in itself, has become an obstacle for me...Learning to really listen to my body and rest when it needs it (or at least not run around all day doing errands and such...) So I find myself resting, with Java in hand, winding down my day in my big comfy chair (and yes with the TV pillow that I made the lovely "Ode to a TV pillow" video about...) against my better wishes.
And that brings out CHRONICLYsILLy Obstacle course to an end... For now! It is always entertaining to say the least to see what new obstacles each and everyday will bring... And I hope that this helps bring clarity to those of you that are not Chronically Ill, as to what the life of Lupie (or any chronically ill person) can bring and the challenges we face every day...But of course around here...We always do it with a CHRONICLYsILLy twist, lots of humor, and tons of belly giggling laughter (it's the only way!) And now before we part ways, I'd like to leave you all with our Page of Hope-Nothing is Kimpossible as well as our link for more information about the Butterfly Gala and Ticket and Tables for it...Please feel free to stop by the guestbook on the Page of Hope and leave some love, take a look around and if you'd like make a small contribution (all proceeds go to the LFA, and for the Butterfly Gala that I am hoping to attend!) And of course I would never leave you without our daily Jolt-of-Java to get your Sunday morning started off right ( or perhaps conclude your evening depending on where you live and what time you are reading!)
Jolt-of-Java: "The friend in my adversity I shall always cherish most. I can better trust those who help to relieve the gloom of my darkest hours than those who are so ready to enjoy with me the sunshine of my prosperity...Because the ultimate measure of a man is not where he stands in moments of comfort... But rather where he stands at times of challenge and controversy..." An Adaption from Ulysses S. Grant and MLK Jr.