...Awakened by my late night cravings for chocolate Swiss rolls and Pepsi once again. I only weigh about 110 pounds, but I wonder whether that will fluctuate in the months to come. *Le sigh* Can you believe those two are just a few of the symptoms from my current medication; Prednisone.
Let me take a few moments to assess the happenings of my body at this moment. My fingers and knees are a bit shaky, and my toes haven't stopped tingling for the past hour or so. My belly is at a constant state of "fullness" even without having eaten in several hours. I am told this is a result of Lupus activity in my kidneys. Keeping my hands out of my hair seems to be a difficult task these days...even more so when I realize there is hair in my hands after every time I stroke my strands. All this I have been trying to keep track of in a type of "Food diary". I have found that some foods irritate me and can sometimes cause a Lupus flare.
By Lupus flare, I mean swelling and aching of the joints, stomach pains, migraines, nausea, etc... Some flares are worse than others; I usually never know how bad a day will be until its occurring at the moment. I strongly encourage other "Lupies" to keep food & body diaries. It helps to look back on it and know what is going on as you travel your journey with Lupus.
In effort to find a way to express how it feels to have Lupus; I have found a site with an awesome explanation! After reading the BYDLS ( But You Don't Look Sick!? ) post on Lupus, and much tears my mom finally has an inkling of what it is I go through each day. She can finally understand how much of a battle it is just to be able to rise from my bed; let alone get my day started.
MAY is the national month for Lupus Awareness! Educate yourselves & share that knowledge with others. Remember knowledge is Power!
But You Don't Look Sick!? < Read this amazing explanation for what life is like living with Lupus & share it with others to help spread Lupus Awareness.