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Carla U.'s Twitter Updates

long underwear was a great idea. until i went into the very packed NY city Macy's. thought i would burst into flames. 3 days ago
Not pleased about the upcoming remake of Karate Kid. You can't make a coming of age story with a 10-year-old. 3 days ago
Only 15 days until the days start getting longer again! 4 days ago
law' ghobe'. #klingon (translate: http://bit.ly/7qPRpp) 4 days ago
vay' naDev jatlh tlhIngan? #klingon (translate: http://bit.ly/69SkHr) 4 days ago
 

So what's on Your Mind (Sorry i asked)

Posted Jun 18 2008 6:08pm
I got an MRI a few months ago. The rheumatologist really didn't say anything about the MRI results except "you have sinusistis" (duh, i have been blowing my nose for 15 years, ever since that first spring after I started taking prednisone) and "there is a cyst on your brain." (there's always something on my mind, but not usually literally) and "see you in 3 months" (I assume that last comment meant i'd live at least another 3 months).



I think maybe she said it was nothing to worry about, but then it's not her brain, so why should she be worried? Personally, I love my brain. It is my favorite part of me. The rest of me falls apart. sometimes I look good, even great (if i do say so myself), but most of the time I don't look as good as I would have if I didn't have lupus and a bunch of drugs in my system. I'm usually frustrated with my bloating face/ ankles and my thinning/ regrowing hair, and of cousre my extra 15 pounds or so. but my brain, it always works. I have a lot of fun with my brain. i would be very lonely without it.



On the other hand, there is this musician out there who has a cancerous brain tumor and he has been touring and making a living and doing just great for *years* past his death prognosis- it's like the big scare gave him a new lease on life. hasn't affected his congnitive abilities at all.



On yet another hand (3 hands- tough time finding shirts!), my aunt just died of brain cancer and did lose some cognitive function in the last 6 months. of course that could have been the drugs.



Well, as they say in 12-step, just for today i have a brain that works and a blog and a lupus listserv to type in my stream of consciousness to, who respond back with kindness and reciprocal playfulness. if i had never had an MRI i'd have never known about the cyst. and they aren't going to do anything about it anyway. so i need to learn to just let it go i suppose.



You know if i were a saint then making fun of my cyst would be SAC-religious.



maybe i misunderstood when someone said "put a sock in it."

(oh i thought "you said put a sac in it")



I could keep up with the puns, but not everyone is so *fluid* in English.

cyst... fluid...? oh never mind.



Normally I'd make these jokes with my hubby but i don't think i want to remind him there's this "thing" in my brain. But I figure if you're reading my blog, you probably have lupus and you can handle the topic. We all feel like health time bombs at some point.



from my listserv pals:



" Carla, let us know what that means. Did

you ask



for a-cyst-ance? .Let us know what it

means. You are in my thoughts. We need you. Jesse

>>>>>>>>>>>>
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