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Seeking Parents of Children and Teens with Lupus Nephritis

Posted Apr 01 2010 4:44am
Is your child or teenager being treated for lupus nephritis?

The Lupus Foundation of America (LFA) Education & Research department is gathering information on the short- and long-term side effects and quality of life issues related to lupus nephritis medications -- for example, fertility concerns, hair loss, missing school, or increased risk of infections.

If you would be willing to complete a short survey about how lupus nephritis medications have affected your family and your child with lupus, please email Jenny Palter at palter@lupus.org . Once the survey has been posted online (by next week), Jenny will send you the link.

Your participation will be a great help in the LFA's efforts to assist pediatric rheumatologists in developing best treatment protocols for our young people with lupus nephritis.

Thank you!
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