Seeking Parents of Children and Teens with Lupus Nephritis
Posted Apr 01 2010 4:44am
Is your child or teenager being treated for lupus nephritis?
The Lupus Foundation of America (LFA) Education & Research department is gathering information on the short- and long-term side effects and quality of life issues related to lupus nephritis medications -- for example, fertility concerns, hair loss, missing school, or increased risk of infections.
If you would be willing to complete a short survey about how lupus nephritis medications have affected your family and your child with lupus, please email Jenny Palter at firstname.lastname@example.org . Once the survey has been posted online (by next week), Jenny will send you the link.
Your participation will be a great help in the LFA's efforts to assist pediatric rheumatologists in developing best treatment protocols for our young people with lupus nephritis.