First, I encourage any newly diagnosed patient to check out the most authoritative non-profit lupus organization site: The Lupus Foundation of America (LFA), where you will find a wealth of information and links to other reliable sources of information about lupus.
Browsing the LFA site over and over is a great place to start learning about lupus and how to manage it!
Next, if you want to meet other lupus patients and find out more about lupus-related activities in your area, it is highly likely that there is a local chapter of the Lupus Foundation of America nearby.
Links and contact information to these state and local chapters are also available. Our Arizona Chapter has a great web site, several support groups, social activities and free information available to people in our area. Most chapters have similar information and services available to help lupus patients and their families in their areas learn more about lupus.
Also, please feel free to come back to my blog any time. I would welcome your comments about any of my posts, including any new questions that you might like to ask.
You also might want to check out some other lupus patients’ blogs. You will find links to some of these on my blog roll. A few are written by some amazing women who have a more recent lupus diagnosis than me, and you may find they share some of your current new patient experiences and questions.
Lupus, with proper treatment...
Please realize that with proper treatment and correct information, lupus need not keep you from living a joyful and productive life. If properly treated, it need not shorten your life expectancy. Lupus is definitely not a death sentence, nor is it terminal, even though there is not ”cure” for lupus yet.
Lupus is an autoimmune, systemic, non-contagious disease, that is medically similar in may ways to Rheumatoid Arthritis (RA). However, from time to time lupus may affect many more systems of your body than RA.
Lupus tends to flare up and then quiet down again, and when properly treated before and during flares, its progression and severity can be greatly minimized.
My prayers and best wishes to newly diagnosed lupus patients navigating through this new and challenging chapter of your lives!