I have a lupus blog / website I'd like to share with you. It is called But You Don't Look Sick. It's run by a woman -- Christine -- who lives in New York.
Here's a little bit about Christine.
"Christine spends her time writing, speaking, volunteering, and being a patient advocate. She enjoys spending time with her husband and baby girl. She started the website butyoudontlooksick.com to help others. She is also the creator of 'the Spoon Theory.'"