I had to get stuff for our daughter for school and in the end I made myself feel so unwell. I hurt worse than I have in a long time and more than that I was feeling like I had a virus. I could not do things without feeling really sick and unwell.
Since she went back I have taken the opportunity to rest and am now feeling quite good.
We had some colder more autumnal weather and my joints all hurt, but the weather has turned back to warm and sunny and with it my arthritis is behaving. I have a lot of aching joints and sometimes I cannot move in bed because of the pain it causes. But at least I am not feeling so unwell.
Others have told me that lupus and APS both can make you feel really unwell if you push yourself. But it is so hard to know where the line is between not doing enough and doing too much.
I have a friend who has had a big personal problem and she has rung me up a lot recently. Because she needs someone to talk to it has meant I have spent a lot of time sitting at home. This has been good for me, and I hope that I in turn have been able to help her by being someone she can tell her problems to. It has made me feel useful, and it is nice to know that we can help someone and be useful.
Today I went with out daughter to see if we could sort out her phone. I bought it for her birthday in mid May and it has stopped working. I was worried that we would be told that it was her fault as it is a touch screen phone and she has a scratch on it. But the man at the phone shop says the scratch should not have stopped it working. So it has been sent back to be repaired.
I have made myself some new gloves during my quiet time. I found the pattern on a web site and they are so easy to make. They are really not much more than rectangles and then you sew them up so that you end up with a sort of finger less mitten. I made about three pairs for me and another two pairs, one for my mum and one for my daughter. I hope that they will help my arthritis as they will keep my wrists warm. I noticed last year that when my hands were cold my wrists hurt more. So these will be good at home.
I have also started reading my books for my next course, even though at the moment I have a place reserved waiting for the paper work to be processed. The course is children’s literature and I have read Harry Potter. The kids have read them all but I just watched the films.
We also borrowed an audio book from the library. It is Northern Lights, known in America as The Golden Compass. My husband and I listened to it and the other two books in the trilogy. So that means I have read two books already. Just another 12 to go, although some of them are short books like Peter Rabbit.
I am looking forward to my next course. It gives me something to structure the day. I have goals and deadlines to meet. Gives me something worthwhile to do. There is nothing worse than just sitting around feeling rough.
When I was a child I remember a few times my parents sending me to school when I felt unwell saying that I would forget about feeling unwell. The principle is right. When my pain is bad in the night I put the TV on as if you can keep your mind off the pain it is often not as bad.