I have had cilicone implants since 1982. Two months after my surgery I started having spontainious pnuemothoraxs 27 collapses on left side 7 on the right ,I had the apex of the left lung removed. It was a good decision. also after the implants, I started getting fevers alot ,it caused me to be achy but no other symptoms except when the dr did a cbc my red count was down my white cell where off the charts. The dr did a cbc daily , about the 5th. day the fever was goneand my white count was in normal range.That was in 1983 I was sent to an onocologist. He was very good and ran all kinds of test , looking for whatever could cause this. leucymea Is what they were thinking all negative, I had dunsbar syndrom. Nothing ever showed up unless I was having a fever spell , then they did some tests again and found nothing. was tested for Lupus they said negative But I just read there is no real test for lupus . I have had all the signs and symptons of lupus since the fevers started I have them to this day. I have fibromyalgia,fibrocystic diseasewhich cauased huge cysts on my breastalso on my overies very painful. I had the softball size cyst removed 3 months later I have 3 I asked my plastic surgeon to do a bilaterral mastectomy, he really didn't want to but was glad he did, both implants had ruptured. When? No way to tell excactly he put in saline inplants which were rippily one leaked so I went back and had those removed and cilicone put in no problem I was already sick had to have hystorectomy also .4 yrs. ago my dr. said I have peripherral nuerapathy both legs,very severe dry eye syndrome,polyarthritis,manic depression,bulging disk in lower lumbar which is abuts the femeral nerve,severe back pain , hair loss ,wieght loss ( always have been skinny ) but I did get up to 130lb. now 95 if that.Should I add Lupus to the list. Dow Corning has denied my diease claim of GTCS twice they also denied ATCD I have all 10 symptoms denied. If there is no real test for Lupus how do I prove I have it?The dr.s I have got now won't listen to me o do any kin of tests . I live 26 miles from nearest town & dr. that was treating me up & left. the subs took away my premerin,the duragesic patches(had been using 5 years), then took my painpills away, baclofin, imitrex,saying they are not drug dealers. Ive been on these meds plus clonopin/wellbrutrin. Top surgeon said 90% chance of peralisys if he id back surgery. How do I get a Dr. to listen to me so I can get some help ,I was hit hard in the back 5 months ago somehing popped, & took breath away severe pain left iliac bone slides apart then snapes back can't put wieght on leg or stand for longer than 3 to 5 min. pan gets to be more than I can take,I can take alot, I can't get an x-ray or an MRI or any bloodwork nothing. If I ever do find a new Dr. how do I get him/her to actually listen to me about my history ? If the bulging disk broke ( I'm positive) it will heal wrong & I have had to give up alot of things I go an do with my dogs who are trained to help me. I'm scared , and have been jumping hoops since my dr left I have had to see 9 dr. in 1 month to get something for this pain , Therepast, said drink water,1 dr.called me a liar that I don't take premerin, would give me anything no x-ray,I don't abuse my meds,they never have my chart. Any advice before its tolate t get the right help would be nice. ,Thank You lisa crafton
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Posted by Lisa
I have had cilicone implants since 1982. Two months after my surgery I started having spontainious pnuemothoraxs 27 collapses on left side 7 on the right ,I had the apex of the left lung removed. It was a good decision. also after the implants, I started getting fevers alot ,it caused me to be achy but no other symptoms except when the dr did a cbc my red count was down my white cell where off the charts. The dr did a cbc daily , about the 5th. day the fever was goneand my white count was in normal range.That was in 1983 I was sent to an onocologist. He was very good and ran all kinds of test , looking for whatever could cause this. leucymea Is what they were thinking all negative, I had dunsbar syndrom. Nothing ever showed up unless I was having a fever spell , then they did some tests again and found nothing. was tested for Lupus they said negative But I just read there is no real test for lupus . I have had all the signs and symptons of lupus since the fevers started I have them to this day. I have fibromyalgia,fibrocystic diseasewhich cauased huge cysts on my breastalso on my overies very painful. I had the softball size cyst removed 3 months later I have 3 I asked my plastic surgeon to do a bilaterral mastectomy, he really didn't want to but was glad he did, both implants had ruptured. When? No way to tell excactly he put in saline inplants which were rippily one leaked so I went back and had those removed and cilicone put in no problem I was already sick had to have hystorectomy also .4 yrs. ago my dr. said I have peripherral nuerapathy both legs,very severe dry eye syndrome,polyarthritis,manic depression,bulging disk in lower lumbar which is abuts the femeral nerve,severe back pain , hair loss ,wieght loss ( always have been skinny ) but I did get up to 130lb. now 95 if that.Should I add Lupus to the list. Dow Corning has denied my diease claim of GTCS twice they also denied ATCD I have all 10 symptoms denied. If there is no real test for Lupus how do I prove I have it?The dr.s I have got now won't listen to me o do any kin of tests . I live 26 miles from nearest town & dr. that was treating me up & left. the subs took away my premerin,the duragesic patches(had been using 5 years), then took my painpills away, baclofin, imitrex,saying they are not drug dealers. Ive been on these meds plus clonopin/wellbrutrin. Top surgeon said 90% chance of peralisys if he id back surgery. How do I get a Dr. to listen to me so I can get some help ,I was hit hard in the back 5 months ago somehing popped, & took breath away severe pain left iliac bone slides apart then snapes back can't put wieght on leg or stand for longer than 3 to 5 min. pan gets to be more than I can take,I can take alot, I can't get an x-ray or an MRI or any bloodwork nothing. If I ever do find a new Dr. how do I get him/her to actually listen to me about my history ? If the bulging disk broke ( I'm positive) it will heal wrong & I have had to give up alot of things I go an do with my dogs who are trained to help me. I'm scared , and have been jumping hoops since my dr left I have had to see 9 dr. in 1 month to get something for this pain , Therepast, said drink water,1 dr.called me a liar that I don't take premerin, would give me anything no x-ray,I don't abuse my meds,they never have my chart. Any advice before its tolate t get the right help would be nice. ,Thank You lisa crafton