I am so pleased to share with you that the Lupus Foundation of America is redoubling its efforts to fight lupus and increase funding for lupus research. A new survey conducted by the Lupus Foundation of America found that those at greatest risk for the disease have never heard of lupus or know little or nothing about lupus beyond the name.Understanding this fuels great urgency for increased understanding and awareness of lupus.
We wanted to learn how we could make our voice heard louder to increase public awareness and understanding of the disease. To do this, we conducted extensive research among people with lupus, their families, physicians, scientists, and other stakeholders. We asked them how we should talk about lupus. Their words came through loud and clear. The answer:Identify lupus for what it is -- a disease that is agonizingly puzzling, physically challenging, complex, and hard to define. In short, it is the cruel mystery.
With these clear words, a new look, and new national initiatives, we are stepping-up our efforts as a result of these findings. Help Us Solve the Cruel Mystery™is the Lupus Foundation of America’s new rallying cry to achieve our goals.
To support our efforts, we launched theHelp Us Solve the Cruel Mystery™ National Tour, a multi-city education and awareness initiative designed to engage the public, healthcare providers, Members of Congress, and those with the disease to join the fight to end lupus. You can learn more about this exciting program and how you can join the fight by visiting the campaign website atcruelmystery.org .
As you know, our mission is to improve the quality of life for all people affected by lupus through a comprehensive program of research, education, and advocacy. This mission is not changing. Together we will lead the fight to find the causes and cure for lupus. To learn more, visit our websitelupus.org.
Help Us Solve the Cruel Mystery™!
Sandra C. Raymond President and CEO Lupus Foundation of America, Inc.