Hint Hint: Might it have something to do with the multiple immuno-suppressive therapies they have me on?
So I am working off not nearly enough sleep last night, even after taking a Codeine at bedtime with the hopes of it knocking me out with a 1-2 Punch between that and my blood pressure medication (which I take for vessel and vascular issues) would surely do me in for the night and I could get a decent if not good night's sleep... And it almost worked... Until I woke up about 4 hours after taking the pain killer to what seemed like every single one of my joints screaming "LUCK FUPUS" at me! However, I am up, and managed to get out of bed and am planning another day full of rest and maybe even a nap if the PAD (Prednisone-induced attention deficit) kicks in and distracts me. But other than that I am taking my antibiotics and staying hydrated (my pop's advice- always stay hydrated) and eating my body weight in ice pops (which I'm not really complaining about because I love popsicles!)
Now we have had an exciting week this week, with lots of good news and the latest in Lupus and chronic illness news to share, from Tuesday's post show casing Lisa Copen and Invisible Illness week, to Jodi McKee and her Autoimmune Portrait Project to yesterday's inspirational post on John-Bruce Haslett over on the west coast doing big things to raise awareness as he copes side by side with his wife who is a fellow lupus warrior. Today, I have some more big and exciting news to share with all of you... It is something that has been in the works for quite some time now and finally I have been able to pull together all the loose ends and make it happen. So without further Adieu I would like to proudly and officially Open (The grand opening if you will):
Making awareness stylish and functional so that you can show your support all day every day while raising awareness (10% of all sales are being donated the Lupus Foundation of America for research funds!) ! That's right folks, after all of the PAD settled and I was able to think clearly (even if it was just for a moment!) I have been able to finally open up a shop, thanks to our friends over at www.etsy.com, and have now listed a series of awareness bracelets that are all hand-crafted by yours truly! But these are not just any ordinary awareness bracelet! (come on you know me better than that!) They are CHRONICLYsILLy Awareness Bracelets, made to tailor and meet the individual needs of each and every one of you! These unique and one of a kind bracelets have a few characteristics that will be sure to tickle your fancy! First, each bracelet is different. No two are alike. This was done with the utmost intentions, to symbolize that each bracelet is just as unique as the individual wearing it and that no two cases of Lupus or any chronic illness are alike. Second, they have been strung on a durable yet stretchable elastic cord, making them easy to slide on over your hands and onto your wrists on even your stiffest and achiest of flaring days, but no worries, they each have a fully functional toggle clasp and closure as well! Third (and one of my personal favorites!) each bracelet has what we will refer to as "Jolts of Java beads!" strung on them or dangling as charms to offer you little bursts of inspiration aka "Java" throughout your day every time you look down and see your one of a kind CHRONICLYsILLy Design! Making each and every day your chronically ill, a little more Chronically fashionable! And lastly, each bracelet, when delivered, will arrive with a "Jolt-of-Java tag" attached, offering you a unique and uplifting/inspirational quote that can be easily removed and placed somewhere for a rainy day (mine is in my wallet so anytime I need a little pick-me-up I can read it!) I hope you all enjoy my creations as much as I enjoy making each and every one of them. I am hoping this too, helps not only to raise awareness, but as I have mentioned above, 10% of ALL sales are being donated to the Lupus Foundation of America for crucial research and funds they need to find better treatments to improve the quality of life for those of us living with Lupus each and every day!
I will keep our post short and sweet today as I am heading off to rest a bit this morning, and I will leave you all with our usual concluding words/links and of course our Jolt-of-Java! I hope you all have a CHRONICLYsILLy Day!
Jolt-of-Java: "Twenty years from now you will be more disappointed by the things you didn't do than by the ones you did do. So throw off the bowlines. Sail away from the safe harbor. Catch the trade winds in your sails. Explore. Dream. Discover.-Only those who dare to fail greatly, can ever achieve greatly- " adaption from Kennedy, Einstien & Twain