I've been thinking a lot lately about the Kylie Minogue quote this week about being misdiagnosed. In regards to her battle with breast cancer, she said, "This is an opportunity for me to say something that I have not said before, I was misdiagnosed initially. So my message to all of you and everyone at home is, because someone is in a white coat and using big medical instruments doesn't necessarily mean they are right." I could not agree more.
If I had given up every time that a doctor told me there was nothing wrong with me, I would probably be dead by now. It is amazing to me how doctor's will look at your chart rather than listening to you and jump to the easiest diagnosis so that they can move on to the patient in the next room. It is so hard for anyone suffering with an invisible disease to find a doctor who will really stop, sit down, and listen to your plight.
It took me three years to find the right doctor who decided that even though all the tests said there was nothing wrong with me, that I couldn't be feeling this bad if nothing was wrong. I had to fight every specialist I met with, every nurse who walked in and said you were looking great, what could be wrong with you? Fighting is a daily part of life for Lupus patients, but it's unfortunate that the people we look to for guidance and assistance make us fight harder, not less.
I urge every patient, not just lupies, to ask questions of your doctor. If you don't believe deep down in your gut that what they are saying is right, get a second opinion! This is your life, your body and you know it better than anyone else. Stand up for yourself and get the right diagnosis. It could literally save your life.
"Everyone in the world is constantly fighting an internal battle. A battle between what the brain know is right and what the heart knows it wants."