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Lupus Adventurer

Phoenix, Arizona
I am a lupus patient, wife, mother, grandmother, musician, legal professional, certified public manager, local government employee and Christian. Living with lupus is an adventure, and that adventure is often found between the lines.
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Lupus Adventurer and a 2 year Bloggiversary by Lupus Adventurer Posted in: Blog Posts in Lupus Two Year Bloggiversary Today marks two years since the start of this blog, launched the middle of the night on a hot June evening in 2010.  That night, my joint pa ... Read on »
Lupus and confessions of a coffee mug hugger by Lupus Adventurer Posted in: Blog Posts in Lupus Screaming alarm… The alarm on my tablet PC laying on the end table summoned me from the half dead depths of sleep. The flashing screen announced, “9:20 Dr. Appt.” ... Read on »
Lupus and the concerned sister who paints by Lupus Adventurer Posted in: Blog Posts in Lupus Carol Cavalaris Carol Cavalaris is an artist that lives in a home nestled in the forests of Colorado, where she creates digital paintings of wildlife and nature.  ... Read on »
Lupus and forgetting the unforgettable by Lupus Adventurer Posted in: Blog Posts in Lupus Friday telecommute Last week, there were no doctor appointments or Benlysta infusions scheduled for Friday, the day each week I telecommute and schedule in most of ... Read on »
Lupus, limits and drawing the BIG red line by Lupus Adventurer Posted in: Blog Posts in Lupus A key to managing lupus In every lupus patient’s life, there are people around them who seem to be able to keep going and going without ever stopping, the energize ... Read on »
Lupus and enjoying the small outdoors by Lupus Adventurer Posted in: Blog Posts in Lupus moonlit back yard Life  with systemic lupus has taught me that the pleasure of enjoying the sun’s warming rays is vastly overrated.  For many lupus patients who lo ... Read on »
Lupus awareness blog adventure – 62 posts in 62 days! by Lupus Adventurer Posted in: Blog Posts in Lupus Wow! Yesterday was the last day of Lupus Awareness Month, May 2012 and was also the 62nd consecutive day of Lupus Adventure blog posts.  31 posts in May about 31 Lu ... Read on »
Prognosis and Hope: Lupus Fact #31 – Lupus research lengthens lives! by Lupus Adventurer Posted in: Blog Posts in Lupus Prognosis and Hope: Today, people with lupus are leading healthier lives and living longer than at any time in history, thanks to researchers who continue to discover mo ... Read on »
Prognosis and Hope: Lupus Fact #30 – Working with lupus and ADA accomodations by Lupus Adventurer Posted in: Blog Posts in Lupus Prognosis and Hope: Most people with lupus are able to continue to work. However, some may need changes to their work environment and schedules, such as flexible work ho ... Read on »
Prognosis and Hope: Lupus Fact #29 – Pregnancy successes with lupus by Lupus Adventurer Posted in: Blog Posts in Lupus Prognosis and Hope: Advancing technology and better understanding of the disease have improved pregnancy outcomes. Today, 80 percent of women with inactive lupus can hav ... Read on »
Prognosis and Hope: Lupus Fact #28 – Normal life span expected with current treatment... by Lupus Adventurer Posted in: Blog Posts in Lupus Prognosis and Hope: With current methods of therapy, 80 to 90 percent of people with non-organ threatening lupus can look forward to a normal lifespan.  This puts about ... Read on »
Prognosis and Hope: Fact #27 – Lupus is not contagious but is often invisible or misunderstood by Lupus Adventurer Posted in: Blog Posts in Lupus Prognosis and Hope: Lupus is not contagious and cannot be “given” to another person. Lupus is unlike and unrelated to HIV/AIDS or any other infectious disease. Once peop ... Read on »
Living with Lupus: Fact #26 – Neonatal lupus in the littlest autoimmune patients by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus: Neonatal lupus is a rare condition that affects infants of women who have lupus. With proper testing, physicians can identify most at-risk mothers, an ... Read on »
Living with Lupus: Fact #25 – Cutaneous lupus may someday be more than skin deep by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus: About 40 percent of people who were originally diagnosed with cutaneous lupus, which affects only the skin, will go on to develop systemic lupus that ... Read on »
Living with Lupus: Fact #24 – Lupus in Families by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus: Only 10 percent of people with lupus will have a close relative who has lupus or may develop lupus, and only five percent of children born to a mother ... Read on »
Living with Lupus: Fact #23 – Lupus nephritis and my friend by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus: As many as 40 percent of all people with lupus, and as many as two-thirds of all children with lupus, will develop kidney complications that require t ... Read on »
Living with Lupus: Fact #22 – Not so beautiful butterfly rash! by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus: The malar, or “butterfly” rash on the face is present in about one-third of those with systemic lupus. This flat, reddish rash across the bridge of th ... Read on »
Living with Lupus: Fact #21 – Nervous system involvement by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus:  More than 80 percent of people with systemic lupus will experience some type of nervous system complication. Nervous system issues in lupus range fro ... Read on »
Living with Lupus: Fact #20 – A healthy diet is a healthy Lupus diet by Lupus Adventurer Posted in: Blog Posts in Lupus Living with Lupus:  People with lupus (and everyone else, too) should eat a nutritious, well-balanced, and varied diet that has plenty of fruits and vegetables, whole gr ... Read on »
Coping with Lupus: Fact #19 – Common lupus blood disorders – anemia, thrombocytopenia... by Lupus Adventurer Posted in: Blog Posts in Lupus Coping with Lupus: Blood disorders such as anemia (too few red blood cells) are common in lupus, and can greatly affect the health of lupus patients.  A few blood relate ... Read on »