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Lupus Adventurer

Phoenix, Arizona
I am a lupus patient, wife, mother, grandmother, musician, legal professional, certified public manager, local government employee and Christian. Living with lupus is an adventure, and that adventure is often found between the lines.
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2011 in review by Lupus Adventurer Posted in: Blog Posts in Lupus The WordPress.com stats helper monkeys prepared a 2011 annual report for this blog. Here’s an excerpt: A San Francisco cable car holds 60 people. This blo ... Read on »
2012 in review by Lupus Adventurer Posted in: Blog Posts in Lupus The WordPress.com prepared a 2012 annual report for this blog. Here’s an excerpt: 19,000 people fit into the new Barclays Center to see Jay-Z perform. Thi ... Read on »
4/27 Benlysta infusion #10 while pondering the good, the bad and the ugly of lupus by Lupus Adventurer Posted in: Blog Posts in Lupus The good... Lupus brings on many challenges and many victories.  Today I am sitting in the cancer infusion center at the hospital getting my tenth Benlysta infusio ... Read on »
A heart-felt conversation, but not about Lupus today! by Lupus Adventurer Posted in: Blog Posts in Lupus Easter conversation in my heart Today is Easter Sunday!  My thoughts are focused completely away from my Lupus, and onto the silent conversation going on today in ... Read on »
A little dab will do… by Lupus Adventurer Posted in: Blog Posts in Lupus What's That? Looking in the mirror each morning is not always a thrilling experience, especially after stumbling out of bed, still half asleep, blurry eyed, wi ... Read on »
A little yogurt and yoga goes a long way… by Lupus Adventurer Posted in: Blog Posts in Lupus Yogurt, Granola & Blackberries! Mother always enouraged “drink your milk, it will make your bones strong,” and she was right.  So, today this compliant patient i ... Read on »
A new lupus adventure in Benlysta infusions by Lupus Adventurer Posted in: Blog Posts in Lupus Resuming Benlysta Infusions This past week marked the restart of Benlysta infusions for my lupus under the care of my new rheumatologist.  For the first time since ... Read on »
Awareness? No. It’s never lupus. by Lupus Adventurer Posted in: Blog Posts in Lupus Awareness? Today, while Google Blog searching “lupus,” the 1st page of results listed a post titled “Lupus?” on the blog ”A Place for My Stuff.”  Don’s in ... Read on »
Búsqueda de información lupus en español – Finding lupus information in Spanish by Lupus Adventurer Posted in: Blog Posts in Lupus Lupus en las mujeres de color Español – Yo soy una mujer blanca de mediana edad con lupus, y estoy muy preocupado por mis hermanas lupus de color que no tienen acc ... Read on »
Benlysta & Rituxan infusions for Lupus: the tortoise and the hare by Lupus Adventurer Posted in: Blog Posts in Lupus Rituxan v. Benlysta? Benlysta infusion treatments for my lupus have turned down a slightly bumpy road.  So far, Benlysta has seemed to produce gradual, but not dra ... Read on »
Benlysta for Lupus, the first 1,000 days by Lupus Adventurer Posted in: Blog Posts in Lupus 1,000 days of Benlysta This week (yesterday) marked a quiet little anniversary, the 1,000 day mark after beginning monthly Benlysta infusions for Systemic Lupus Er ... Read on »
Benlysta infusion and forgetting something by Lupus Adventurer Posted in: Blog Posts in Lupus stopped at the valet Today was my last Benlysta infusion of the year, and I was the last infusion of the day at the hospital’s cancer infusion center.  As I arrive ... Read on »
Benlysta Infusions for Lupus – Day 30 by Lupus Adventurer Posted in: Blog Posts in Lupus Day 30 - Benlysta Infusion #3 Yesterday afternoon I had the 3rd Benlysta infusion for my lupus in the series of my first 3 start-up treatments.  After this, they w ... Read on »
Benlysta Infusions for Lupus – Day 60 by Lupus Adventurer Posted in: Blog Posts in Lupus 4th Benlysta Infusion - Day 60 Today was my fourth infusion of Benlysta for Lupus, since they began in late August.  It has been one month since the last infusion, ... Read on »
Benlysta Infusions for Lupus – Day 90 – Thanksgiving by Lupus Adventurer Posted in: Blog Posts in Lupus Thanksgiving Day Thanksgiving Day is the 90th day since the start of my Benlysta infusions for Lupus.  Just one year ago, my doctor and I were deep in a battle try ... Read on »
Benlysta infusions for Lupus after two and a half years by Lupus Adventurer Posted in: Blog Posts in Lupus Waiting for morning fog to lift Last week I drove to the hospital on a Thursday morning.  To get up in time to drive safely, despite my CNS lupus, I had to arise e ... Read on »
Benlysta Infusions for lupus at a fraction of the price by Lupus Adventurer Posted in: Blog Posts in Lupus For two and a-half years I have been blessed to be able to receive Benlysta infusions for my lupus.  Every month, I went to a hospital all the way across town.  My emplo ... Read on »
Better living through chemistry? by Lupus Adventurer Posted in: Blog Posts in Lupus Better Living Through Chemistry? “Better living through chemistry,” so the quip goes!  , or is it really ?  More less, medications are part of lupus and li ... Read on »
Book Review: The Lupus Encyclopedia by Lupus Adventurer Posted in: Blog Posts in Lupus The Lupus Encyclopedia The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families (A Johns Hopkins Press Health Book) by Donald E. Thomas, Jr., M.D., ... Read on »