Health knowledge made personal

Lupus Adventurer

Phoenix, Arizona
I am a lupus patient, wife, mother, grandmother, musician, legal professional, certified public manager, local government employee and Christian. Living with lupus is an adventure, and that adventure is often found between the lines.
› Share page:

Posts

Sort by: Most recent | Name
May 2014 Arizona Walk to End Lupus Now™ Postponed! by Lupus Adventurer Posted in: Blog Posts in Lupus Arizona Walk Postponed to September 27, 2014 The Arizona 2014 Walk event has been postponed from May 3, 2014 to September 27, 2014 at Sunset (more to follow) and ... Read on »
Lupus for Benlysta after 33 Months by Lupus Adventurer Posted in: Blog Posts in Lupus 33 months of Benlysta This week marked 33 months of Benlysta infusions for my lupus, adding up to almost three years of taking the only FDA approved biologic medic ... Read on »
Lupus Adventurers Renovating and Redecorating by Lupus Adventurer Posted in: Blog Posts in Lupus Renovating Master Bedroom Any home construction or redecorating project is a challenging undertaking, but with a chronic health problem, extra care is sometimes in ... Read on »
Lupus Adventurer says goodbye to little canus lupus familiaris by Lupus Adventurer Posted in: Blog Posts in Lupus Sleepy little friend Just about sixteen years ago, long before Benlysta, before Rituxan, and shortly before the beginning of Methotrexate and Imuran, little Rudy j ... Read on »
Guest Blogger: Donald E. Thomas, M.D. on Lupus Hepatitis by Lupus Adventurer Posted in: Blog Posts in Lupus By Donald E. Thomas, MD The Lupus Adventurer is extremely pleased to introduce guest-blogger, Donald E. Thomas, Jr., MD, FACP, FACR, author of  The Lupus Encyclope ... Read on »
Lupus Poem: Sunshine My Enemy, Sunshine My Friend by Lupus Adventurer Posted in: Blog Posts in Lupus Sunshine My Enemy In our sky a yellow orb emits its brilliant light, its hues combined, a streaming beam so powerful and bright. Traversing space and vast expa ... Read on »
Walk to End Lupus Now™ Scottsdale, AZ May 3, 2014 by Lupus Adventurer Posted in: Blog Posts in Lupus Walk to End Lupus Now™ 2013 Scottsdale, Arizona May 3, 2014 will bring the exciting 5:00 p.m. start of the Scottsdale, Arizona Walk to End Lupus Now™.  Last year ... Read on »
Lupus adventures contemplating a musical quasi-retirement by Lupus Adventurer Posted in: Blog Posts in Lupus Stress & lupus are unfriendly companions With lupus, it is clear that health issues could shorten the years that I can continue working in the demanding legal prof ... Read on »
Meet Toni Grimes, an amazing Arizona lupus warrior by Lupus Adventurer Posted in: Blog Posts in Lupus Toni Grimes, Lupus Patient It is my special pleasure to introduce you to a beautiful woman with a matching soul, Toni Grimes.  She is, in my opinion, the foremost ... Read on »
Getting good news of seemingly quiescent lupus by Lupus Adventurer Posted in: Blog Posts in Lupus Develop a good doctor-patient rapport Developing a good relationship with our doctors is critical to effective management of lupus.  The second appointment with my ... Read on »
Benlysta Infusions for lupus at a fraction of the price by Lupus Adventurer Posted in: Blog Posts in Lupus For two and a-half years I have been blessed to be able to receive Benlysta infusions for my lupus.  Every month, I went to a hospital all the way across town.  My emplo ... Read on »
Survey UNVEIL Understanding the Impact of Lupus by Lupus Adventurer Posted in: Blog Posts in Lupus SLE Patient Survey “UNVEIL” NEWSFLASH:  Catch it fast, if you want to help lupus research and make a couple of dollars at the same time!  I don’t usually post twic ... Read on »
A new lupus adventure in Benlysta infusions by Lupus Adventurer Posted in: Blog Posts in Lupus Resuming Benlysta Infusions This past week marked the restart of Benlysta infusions for my lupus under the care of my new rheumatologist.  For the first time since ... Read on »
Lupus and being healthy, wealthy and wise? Part 2 by Lupus Adventurer Posted in: Blog Posts in Lupus False guilt about ADA work schedule accommodations? Benjamin Franklin’s well-known words include the idea that early to bed, and early to rise can make us healthy, ... Read on »
Lupus and being healthy, wealthy and wise? Part 1 by Lupus Adventurer Posted in: Blog Posts in Lupus Early to Bed Benjamin Franklin had it right promoting, “early to bed, early to rise, makes a man health, wealthy and wise.”  Lupus can cause extreme bone-tired fa ... Read on »
Lupus Adventures through Three Foggy Mornings by Lupus Adventurer Posted in: Blog Posts in Lupus Fog at awakening Thick blinding fog at awakening, a cloud seems to fill all my room. Fog starts to rise with my breakfast, and then, a little bit more while ... Read on »
Lupus and the first new rheumatologist appointment by Lupus Adventurer Posted in: Blog Posts in Lupus positive - reassuring – affirming In three words, my first appointment with my new rheumatologist was positive, reassuring and affirming.  After twenty years with ... Read on »
Benlysta infusions for Lupus after two and a half years by Lupus Adventurer Posted in: Blog Posts in Lupus Waiting for morning fog to lift Last week I drove to the hospital on a Thursday morning.  To get up in time to drive safely, despite my CNS lupus, I had to arise e ... Read on »
Lupus adventures navigating a new doctor’s forms! by Lupus Adventurer Posted in: Blog Posts in Lupus Filling out new patient forms Every person with a chronic medical condition, like lupus, has done this time after time.  Each time we face the adventure of seeing ... Read on »
Healthline.com highlights 12 lupus blogs by Lupus Adventurer Posted in: Blog Posts in Lupus Healthline.com selects top blogs Done in 7 minutes Yesterday afternoon, while standing in my kitchen cooking Sunday dinner after church, I received an unexpect ... Read on »