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Lupus Adventurer

Phoenix, Arizona
I am a lupus patient, wife, mother, grandmother, musician, legal professional, certified public manager, local government employee and Christian. Living with lupus is an adventure, and that adventure is often found between the lines.
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Benlysta for Lupus Without Infusions? by Lupus Adventurer Posted in: Blog Posts in Lupus Benlysta (belimumab) for Lupus Clinical trials are an incredibly important contribution to new drugs for lupus.  Before 2011, there had not been any new FDA appro ... Read on »
Independence Day Goodbye by Lupus Adventurer Posted in: Blog Posts in Lupus Independence  Day Four years ago his eyes looked out ahead for times yet to be, Seventy-nine years from birth till then, but what came next he didn’t see. Fall ... Read on »
Lupus Adventurer’s Poem – I Forget It Can Bring a Smile! by Lupus Adventurer Posted in: Blog Posts in Lupus I Forget it Can… Midway through workout at ten minutes time, Limbs move in clumsy odd style. But just a few more, endorphins arise, I’ll remember why it bri ... Read on »
Lupus and seeking the simple blessing of good sleep by Lupus Adventurer Posted in: Blog Posts in Lupus Seeking Sweet Sleep Sleep should never be taken for granted, or pushed aside as a necessary interruption.  It’s merits are poorly underappreciated and pursuit of i ... Read on »
Book Review: The Lupus Encyclopedia by Lupus Adventurer Posted in: Blog Posts in Lupus The Lupus Encyclopedia The Lupus Encyclopedia: A Comprehensive Guide for Patients and Families (A Johns Hopkins Press Health Book) by Donald E. Thomas, Jr., M.D., ... Read on »
Lupus and the undying hope of a glorious morning by Lupus Adventurer Posted in: Blog Posts in Lupus Glorious Morning! These were not the first thoughts or words a few mornings ago!  Many nights, after dropping off into a hopefully deep slumber, the next realizat ... Read on »
Healthline.com Best Lupus Blogs of 2014 by Lupus Adventurer Posted in: Blog Posts in Lupus A few weeks ago an unexpected communication from an editor at Healthline.com announced that Lupus Adventures was selected as one of the top twelve lupus blogs of 2014. ... Read on »
What Comes After Lupus Awareness Month 2014? by Lupus Adventurer Posted in: Blog Posts in Lupus Lupus Awareness Month 2014 has now drawn to a close, with a full 31 days of heightened lupus awareness now behind us, and eleven months ahead until Lupus Awareness Mont ... Read on »
Lupus and General Health Facebook Chat – Hospital for Special Surgery by Lupus Adventurer Posted in: Blog Posts in Lupus This afternoon at work included an unusual break from other duties, by joining a one-hour Facebook chat “Lupus and General Health” that was hosted at 5:30 EST/2:30 PST b ... Read on »
Lupus Adventures Reader Survey by Lupus Adventurer Posted in: Blog Posts in Lupus In order to help fine-tune the focus of articles to Lupus Adventures readers’ needs and interests, your help with a simple three-question survey would be great.  Even if yo ... Read on »
Benlysta for Lupus, the first 1,000 days by Lupus Adventurer Posted in: Blog Posts in Lupus 1,000 days of Benlysta This week (yesterday) marked a quiet little anniversary, the 1,000 day mark after beginning monthly Benlysta infusions for Systemic Lupus Er ... Read on »
LFA Lupus Awareness Month Action Ideas #5 – Donate by Lupus Adventurer Posted in: Blog Posts in Lupus Donate The Lupus Foundation of America is supported by generous donations from the lupus community.  Contributions support the cost of LFA’s efforts to rally exper ... Read on »
LFA Lupus Awareness Month Action Ideas #4, Dear Lupus! by Lupus Adventurer Posted in: Blog Posts in Lupus While talking on Skype a few weeks ago with a friend at the Lupus Foundation of America (LFA) office in Washington, D.C., she explained about the LFA’s upcoming lupus aw ... Read on »
HHS Lupus and General Health Chat on May 29, 2014 by Lupus Adventurer Posted in: Blog Posts in Lupus Questions About Lupus? On the afternoon of May 29, 2014 at 5:30 p.m. EST (2:30 PST) the Hospital for Special Surgery (HSS) will host a one-hour live Facebook chat ... Read on »
Mother’s Day Hope by Lupus Adventurer Posted in: Blog Posts in Lupus Once again, its Mother’s Day, with my mom no longer here, to hug, to hold or walk arm in arm, as we did in yesteryear. Her love stays with me, in my heart, as I ... Read on »
World Lupus Day May 10, 2014 by Lupus Adventurer Posted in: Blog Posts in Lupus Please listen to this lupus awareness YouTube video from the Lupus Foundation of America.  Julian Lennon  tells about his friend Lucy Vodden who had lupus, and was the i ... Read on »
LFA Lupus Awareness Month Action Idea #3 by Lupus Adventurer Posted in: Blog Posts in Lupus What can one person do to make a difference?  It might seem like your own efforts are just a drop in the bucket… no, an ocean… when it comes to helping spread informati ... Read on »
LFA Lupus Awareness Month Action Idea #2 by Lupus Adventurer Posted in: Blog Posts in Lupus Pretty in Purple Well, this should be an easy idea for follow through… for the gal who thinks purple is the new black!  The only real problem is finding out if la ... Read on »
LFA’s Lupus Awareness Month Action Idea #1 by Lupus Adventurer Posted in: Blog Posts in Lupus Lupus Awareness Month Action Idea #1 LFA Lupus Awareness Action Ideas The Lupus Foundation of America is in full swing with Lupus Awareness Month.  As a help t ... Read on »
Lupus Adventurer’s Lupus Awareness Acrostic by Lupus Adventurer Posted in: Blog Posts in Lupus Lupus Awareness Acrostic S trikes Y oung S weet T eens E ven M others I nfants C hildren L eft U ndiagnosed P rogresses U ncontro ... Read on »