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lungs_for_life Patient Expert

Manchester, United Kingdom
My name is Rachael Wakefield. I'm 20yrs old from north west England. I suffer from a rare lung disease for which there is no cure. I host a couple of support websites to help support other patients and families affected by rare lung disease.
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Quick update by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine So I'm working on a longer, more indepth blog for on here but for now I thought I'd just post a little update. I've been out of hospital about 2wks now, good going for me. ... Read on »
Weekend by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine So I guess you could say my blogs turn up like buses. Anyway another weekend in Wakefield world of course it can't be straight forward. As usual if I'd have gone with my g ... Read on »
One of two and saying thankyou! by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Phew where to start? I can't believe its been a month since I last blogged! I was so relieved to get the last blog out of my system I was so sure I'd be doing it again soon ... Read on »
Post transplant life by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine It is of course bank holiday weekend and so obviously I have too much time on my hands! I wanted to talk about post transplant life and I guess the necessities of it. I'm ... Read on »
What a week! I'm going to star ... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine What a week! I'm going to start with at Tuesday May 17th, the day wasn't really significant itself, that evening I received a message off friend we'd met through our transpl ... Read on »
boing... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine After a fairly productive and stable week (have a look at the LLTGL Ambassador's blog I wrote last week by clicking here , my call in my own words) last week of course I cou ... Read on »
Quick admission by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine The Royal Wedding bank holiday weekend, a bright, sunny and beautiful event that got everyone in a good mood, shame the same couldn't be said for my little puffers. May 29th ... Read on »
long catch up! with pics! by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine If your viewing this as a note on facebook, I'd be tempted to say don't bother, I've used so much html and pictures it probably looks like jumble view it here instead on ... Read on »
:-) by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Doesn't everything seem so much easier when the sun's out and its warm? This temperature, around 12'c-15'c suits me perfectly at the moment, not too hot and not too cold ... Read on »
I made it home. Gosh that feel ... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine I made it home. Gosh that feels good to say. There was a point where I saw myself never leaving my hospital room again. I sit here and wonder how we've managed it, I say we ... Read on »
It's been a while... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine I wanted to wait to post on here so I could share how I spent Christmas at home and various bits and pieces in the media to thank my donor and her family that I was here ... Read on »
Well I haven't blogged because ... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Well I haven't blogged because I haven't really known what to say these past few weeks. I got home again thankfully, my mum and I have been trained to give my IVs at home an ... Read on »
There's always hope... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Wow when people tell you transplant is a rollercoaster, they really aren't lying. The last 2wks have been a crazy ride of emotions. Today in particular. In my last blog I t ... Read on »
Yesterday I had a monester of ... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Yesterday I had a monester of a clinic appointment. My first proper one since being home. Post transplant it is so important to keep up with appointments to monitor things. ... Read on »
Life is what you make it by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine I came home (properly) on Wednesday. So much has happened over the past 2mths, some of it somewhat unbelievable. Since being home I haven't really done so much, adjusting to ... Read on »
are you ok? by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine I've had so many people ask recently how I'm doing and besides "ok I got a port put in today and I'm to have a peg soon" I haven't really been able to explain how I'm actual ... Read on »
Rant by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine I'm feeling the need to rant, not a negative rant though. Last night one of the nurses that's looked after me quite alot over the last 6mths, asked, well said "I bet you mus ... Read on »
Hmm well my aim of being in an ... by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Hmm well my aim of being in and out within a few days? That went a bit pear shaped! I'm still here. Quite alot has had actually. My 'small Pneumothorax (lung collapse)' I me ... Read on »
Back in by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine Well I've been feeling a bit crappy for a couple of weeks. I started to notice a gradual dip in my exercise tollerance, an increase in breathlessness and lack of appetitte p ... Read on »
Thoughts by lungs_for_life Patient Expert Posted in: Blog Posts in General Medicine I've been doing alot of thinking lately, I know not always a good idea. About my lungs, my health, my donor. I asked about my donor whilst in clinic the other day in view of ... Read on »