Health knowledge made personal

loulou_787

Surrey, United Kingdom
Blog: http://happy-tobme.blogspot.com
I am a 28 year old who has recently received a lung transplant after an agonising wait.  I have pulmonary fibrosis and it is thought to have developed as a result of aggressive cancer treatment received for a childhood cancer called Wilms' tumour. Sadly, I had a number of post... Full Bio
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Harvest for the world by loulou_787 Posted in: Blog Posts in General Medicine                                                     Group pic for LLTGL advocate day                                                       Matt and Kirsty rocking t ... Read on »
When words are not enough by loulou_787 Posted in: Blog Posts in General Medicine I promise not to make this a long post.  Had a great day today as I managed to do a couple of hours at work, run some errands and after a rather long nap.  I got ready to p ... Read on »
Little Miss Strictly by loulou_787 Posted in: Blog Posts in General Medicine After feeling really distended and unwell last night I did some googling on heart failure and was pretty shocked and a bit overwhelmed.  I think my recent symptoms are as a ... Read on »
A bit choppy at sea by loulou_787 Posted in: Blog Posts in General Medicine Today I wasn't particularly chuffed by how my day was unfolding.  Firstly I woke up and felt a bit clammy.  My head was fuzzy and I could just about take my tablets before ... Read on »
Slow n sleepy Sunday by loulou_787 Posted in: Blog Posts in General Medicine Walking back to bed I felt very little sensation in my hands.  My head has been feeling quite light and disconnected in some way?!!?  I think I've totally reached saturatio ... Read on »
Healing time by loulou_787 Posted in: Blog Posts in General Medicine The past few days have been a bit rocky as I think my bod is adjusting to the changes in my prednisolone and tacrolimus.  Its been a bit of a rougher ride than I had expect ... Read on »
***Brand New Look*** by loulou_787 Posted in: Blog Posts in General Medicine This week has been nothing short of manic but I seem to be surviving. Today my bod just caved in after a week of travelling up and down to Newcastle (love ya bro!) and the ... Read on »
¡poq ppo ʇıq ɐ ƃuılǝǝℲ by loulou_787 Posted in: Blog Posts in General Medicine I know that when I'm feeling glum I tend to notice my pain more and it sometimes appears to be something new.  but getting used to my odd bod means that I've realised its t ... Read on »
The thing about forums... by loulou_787 Posted in: Blog Posts in General Medicine Feeling tired is really nothing new in my world but I feel very drained at the moment.  I am hoping a good rest this weekend will see me right and ready to take on next wee ... Read on »
Time for lift off! by loulou_787 Posted in: Blog Posts in General Medicine The ache in my chest and back is relieved somewhat once I lie down in bed and let the soft duvet wrap around me all snuggled and safe.  That total break away from raising, ... Read on »
creativity is the cure by loulou_787 Posted in: Blog Posts in General Medicine The past few days have been really tough healthwise.  I am dealing with quite a few things and ineveitably the stress is affecting my health.  Feeling breathless and feelin ... Read on »
Second year on! by loulou_787 Posted in: Blog Posts in General Medicine So, its arrived!  My second year post transplant.  I really am so fortunate and indeed grateful for all the support, care and love that I have had from everyone. Some are ... Read on »
I had the time of my life!! by loulou_787 Posted in: Blog Posts in General Medicine I had the most amazing 30th Birthday yesterday surrounded by close family and friends.  There was everything burgers on order, sarnies, pizza, chicken bites, bbq chicken, t ... Read on »
30 (ish) things I've learned in the past 30 years by loulou_787 Posted in: Blog Posts in General Medicine To talk To walk To cry when I need to To write To read To draw To ride a bike To rollerskate To drive To horseride To love T ... Read on »
Birthday plans and golden tans... by loulou_787 Posted in: Blog Posts in General Medicine Just as I was about to write this post I realised that I had a dose of Eastenders to watch but now I'm all yours.  Its been another hectic week despite my attempts to scale ... Read on »
Finding a way forward by loulou_787 Posted in: Blog Posts in General Medicine The past couple weeks have reminded me of just how different live can look like depending on the space you look through.  A narrow, small window will only lend itself to fe ... Read on »
Pain, waterfall diet and dodgy hair! by loulou_787 Posted in: Blog Posts in General Medicine This time last week I was in a real bad way. I was really struggling to breathe and I was inches away from going to my local A and E.  I decided that staying relaxed at hom ... Read on »
National Transplant Week 4th-12th July 2010 by loulou_787 Posted in: Blog Posts in General Medicine Feeling pretty crappy this eve as I struggle with some really bad chest pain. It hasn't subsided at all and its getting to me now. Its not great but you know what, I can ... Read on »
Feeling the heat by loulou_787 Posted in: Blog Posts in General Medicine It hasn't been the greatest day of my life so I will keep this short and sweet. The hot weather is a blessing and a curse. Great with a cool breeze but awful in smoggy Lon ... Read on »
Giving is part of living by loulou_787 Posted in: Blog Posts in General Medicine Its been a while since Ive been here and that's partly because of being busy with work projects and getting some lovely sun on me (in very small and careful doses). Pain r ... Read on »
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