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loulou_787

Surrey, United Kingdom
I am a 28 year old who has recently received a lung transplant after an agonising wait.  I have pulmonary fibrosis and it is thought to have developed as a result of aggressive cancer treatment received for a childhood cancer called Wilms' tumour. Sadly, I had a number of post... Full Bio
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National Transplant Week 2011: my mission by loulou_787 Posted in: Blog Posts in General Medicine National Transplant Week (NTW) kicks off today and I thought a great way to encourage people to sign up was to create a QR reader (top right column).  The one you see on th ... Read on »
Health matters by loulou_787 Posted in: Blog Posts in General Medicine Late last night I decided its time to pull the reigns in.  I am back onto my 'Fatnav' to record my calorie intake, number of hours of sleep and exercise.  I record so many ... Read on »
Feeling hot, hot, hot? by loulou_787 Posted in: Blog Posts in General Medicine When its hot and humid like today's weather, its virtually impossible to pursue a 'usual' day.  After years of coping with such days pre and post transplant I think I have ... Read on »
Sore fingers+typing by loulou_787 Posted in: Blog Posts in General Medicine Sore fingers+ typing is never a great thing.  The pain really resonates and reminds me what I have done to myself.  My bad habit has reached shocking levels, even to my meas ... Read on »
Getting the job done...eventually! by loulou_787 Posted in: Blog Posts in General Medicine right...I'll get onto that lower chair so that I only tilt slightly into washing machine still get head rush...blast! feel dizzy so close my eyes and the towel is lifeless ... Read on »
Finding ways to regain my life by loulou_787 Posted in: Blog Posts in General Medicine Things have been looking up a bit this week.  I feel a bit better mood wise and even made it into work for the first time in months!  No easy venture, but it felt good to be ... Read on »
By the sea... by loulou_787 Posted in: Blog Posts in General Medicine It was cold and breezy but walking onto the beach felt really good.  I could breathe with much more ease and I felt lifted.  It was virtually baron ... Read on »
What do we really know about lung diseases? by loulou_787 Posted in: Blog Posts in General Medicine Although I am aware that Cystic Fibrosis is closely associated with lung transplants, I do feel that other lung diseases including LAM and Pulmonary Fibrosis(PF) are often ... Read on »
Getting my engine running... by loulou_787 Posted in: Blog Posts in General Medicine My arm felt really heavy but I felt around my duvet cover for my phone this morning to see if I could take my medication five minutes early this morning and avoid hearing t ... Read on »
Benefits of exercise by loulou_787 Posted in: Blog Posts in General Medicine I think that had I not had a few medical complications thrown my way that I would have been a strong athlete and a competitive dancer or gymnast.  In fact, I know I would ... Read on »
A to Z meme by loulou_787 Posted in: Blog Posts in General Medicine  I love these memes and this one I poached from the lovely Molly who posted hers a few weeks back.  I would love to know if any of you decide to post it on your blog.  I ... Read on »
Tricky times by loulou_787 Posted in: Blog Posts in General Medicine The past few months have been really tricky for me.  I report symptoms and they seem to be somewhat acknowledged but referrals can be so slow that things progressively get ... Read on »
Sun seeking by loulou_787 Posted in: Blog Posts in General Medicine A break from all the stress related to health hiccups was definitely needed.  Myself and two girlfriends went on a much needed holiday to Cancun, Mexico and came home a c ... Read on »
Feeling much better by loulou_787 Posted in: Blog Posts in General Medicine I've been away from my blog lately because I really wanted to focus on my recovery and not necessarily bore everyone with the details. Feeling low is dreadful especially wh ... Read on »
❤Hey, can you be extra kind to yourself? by loulou_787 Posted in: Blog Posts in General Medicine I have a bit quiet lately as I am basically drained of all energy, zest and just want to give my body both physical and mental rest.  I am well aware that my mental stress ... Read on »
Quick update by loulou_787 Posted in: Blog Posts in General Medicine When I wrote my last post I was still unaware of what was wrong with me and was getting no help.  Well, I am pleased to say that my symptoms seem to be down to being vit D ... Read on »
Pain can be a drain by loulou_787 Posted in: Blog Posts in General Medicine This tight, squeezing, "I'm here to get you" pain is running like a steady current all over my body.  It is becoming a bit unmanageable.  I cannot seem to identify a trigge ... Read on »
Reiki, Results and Randoms by loulou_787 Posted in: Blog Posts in General Medicine I stopped at the traffic lights and the dreaded light glared at me from the dashboard: the empty petrol light.  That has happened to me twice since I started driving 10 yea ... Read on »
Things in life that are priceless! by loulou_787 Posted in: Blog Posts in General Medicine                               Some of the Cookie Crew and Me Although I am fully embracing the role as CEO Employee of the Year for Thomas Cook 2010 its s ... Read on »
Bruised and confused :-( by loulou_787 Posted in: Blog Posts in General Medicine It's hard when having breathing problems and having to get ready in a certain time.  This morning, another early rise for my day on the ward.  Day two of the vein saga. Two ... Read on »