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loulou_787

Surrey, United Kingdom
I am a 28 year old who has recently received a lung transplant after an agonising wait.  I have pulmonary fibrosis and it is thought to have developed as a result of aggressive cancer treatment received for a childhood cancer called Wilms' tumour. Sadly, I had a number of post... Full Bio
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Goodbye my friend by loulou_787 Posted in: Blog Posts in General Medicine Hey everyone. As some of you know, my friend,  the lovely Rachael Wakefield passed away just two weeks ago.  This girl was just seriously amazing and she has touched ... Read on »
I will bounce back...in time by loulou_787 Posted in: Blog Posts in General Medicine Adapting to my body changes has been and continues to be a struggle.  Sleep dominates most of my day but I cannot fight it.  It's impossible now.  When I envisage just how ... Read on »
Dazed and Confuzed or Unfazed and Amused? by loulou_787 Posted in: Blog Posts in General Medicine Some say that what goes up must come down and I think I'm in agreement.  Things will never be the same forever.  That's life really.  But its difficult to accept if the com ... Read on »
Counting spoons by loulou_787 Posted in: Blog Posts in General Medicine After last night I knew that I would need to take it easytoday.  So I gave myself lessspoons.  I have already used three & sonow I will be resting with just two remainin ... Read on »
Looking to others by loulou_787 Posted in: Blog Posts in General Medicine After last night I knew that I would need to take it easy today.  So I gave myself less spoons.  I have already used three & so now I will be resting with just two re ... Read on »
Taking it easy by loulou_787 Posted in: Blog Posts in General Medicine After a gruelling night of sleeplessness and pain, I wasn't too jolly waking up early for my hospital appointment and bloods this morning.  With mums help I was able to be ... Read on »
Twists and turns in the labyrinth by loulou_787 Posted in: Blog Posts in General Medicine This post was written yesterday 31st Aug 2011 Sleep deprivation, mouth sores and now wrist tendonitis. I really have bagged myself a few unwanted things during this re ... Read on »
Taking control by loulou_787 Posted in: Blog Posts in General Medicine All week I have endured awful pain in my lower arms and wrists.  As usual, I don't have swollen ankles or abdomen like most people would with an odema .  This is basically ... Read on »
Bizarre ER by loulou_787 Posted in: Blog Posts in General Medicine I can only describe the past 24 hours as bizarre.  Kept awake in severe pain last night, I fought with my sleep and then after a number of hiccups with feeling tachycardic, ... Read on »
Take a break! by loulou_787 Posted in: Blog Posts in General Medicine It really saddens me that the past couple of days I have a seriously bad pain in both lower arms.  Its restricted my ability to do everything I need to do. Its likely down ... Read on »
Not just living the dream, living the possible... by loulou_787 Posted in: Blog Posts in General Medicine If I were looking down on me I'd think, yeh, there’s good times going for this one: she’s gone back to work and become employee of the year for Thomas Cook, managed to do ... Read on »
Cherish not perish by loulou_787 Posted in: Blog Posts in General Medicine Cherish not perish Me in hospital last week It feels great to be back home at last.  The journey was tiring but I was determined to get back ... Read on »
All change for the better? by loulou_787 Posted in: Blog Posts in General Medicine All change for the better? Changing medication is a big deal.  I don’t deal with it well and the last couple weeks have had me pumped with high doses of ... Read on »
Fresh air, fresh mind by loulou_787 Posted in: Blog Posts in General Medicine Today I was treated to time out of isolation in hospital (yes!)and was taken to Newbiggin-by-the-sea in Northumberland.  My energy levels were ... Read on »
Meme snatching by loulou_787 Posted in: Blog Posts in General Medicine Ok, so I think I'm doing pretty well at coping with the swollen steroid foot and face experience and constant nauseous feeling like something is about to surface but won't ... Read on »
Gotta roll with it... by loulou_787 Posted in: Blog Posts in General Medicine  (was trying to post last night...oops!) It's been a tough one today. So easy to forget what my body has been through the past through months and I've literally just s ... Read on »
When the chips are down... by loulou_787 Posted in: Blog Posts in General Medicine One of my difficulties when things healthwise goes wrong that I sometimes forget t update my blog.  I'd be sad to think of anyone ... Read on »
Playing with pain by loulou_787 Posted in: Blog Posts in General Medicine When I am asked to describe my daily pain, I draw breath as I contemplate where to start.  I usually begin with the most adverse and then maybe mention the lesser pains tha ... Read on »
Sew simple to sign up! by loulou_787 Posted in: Blog Posts in General Medicine Display board at London Chest Hospital (my poster on the left!) So National Transplant Week 2011 is coming to a close but the cause goes on!  I managed ... Read on »
Just a quick post today to sha ... by loulou_787 Posted in: Blog Posts in General Medicine Just a quick post today to share a link to a blog by Kez called 'Life in Degrees' which I was sent on Twitter.  It features a poem that is very poignant.  If 100 people foll ... Read on »