Health knowledge made personal

LivingwithTrisomy13.org

Orange County, California
Mom to a delightful special needs child who is living with Full Trisomy 13. Natalia is now 9 yrs old, born in 2000.  http://livingwithtrisomy13.org/album14.htm Be sure to visit SOFT USA for global Trisomy support http://www.trisomy.org And also the Living with Trisomy 13 – Patau Syndrome website where you can view over 300 families who share this unique life journey with Trisomy 13.  Transforming Grief into Thanksgiving Joy. http://www.livingwithtrisomy13.org
› Share page:

Friends

Name
Highlights

Mom2Taytiebug

Lebanon, Oregon
My name is Dawn and I am the mother of a 20 year old daughter with a rare chromosome abnormality called Trisomy 9p. She was diagnosed with Lennox-Gastaut syndrome, a seizure disorder. She is considered medically fragile, but she is a fighter. She was not expected to reach her 2nd birthday and here she is, 18 years later, still smiling through it all. I think that we parents of special needs...