Mom to a delightful special needs child who is living with Full Trisomy 13. Natalia is now 9 yrs old, born in 2000.   Be sure to visit SOFT USA for global Trisomy support And also the Living with Trisomy 13 – Patau Syndrome website where you can view over 300 families who share this unique life journey with Trisomy 13.  Transforming Grief into Thanksgiving Joy.