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a short update

Posted Nov 06 2012 11:17am
We are hanging in there! Anna's doing well. Her LFT's continue to look great. Her CMV levels aren't coming doing as quickly as her clinic would like, so her Ganciclovir will be continued.

We had a week of dark, rainy, cold weather last week, thanks to Sandy. This week it's still cold, but sunny, so we're hoping to get OUT of the house a few times! Have I mentioned how awesome all of the doctors and nurses have been? They have been wonderful. They listen to our concerns and questions, and explain everything in terms we can understand. Anna adores two nurses in particular; her transplant coordinator, Pam, and her home health nurse, Todd.




They are one reason we have stayed sane through this tumultuous period of our lives!


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