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Lisa Patient Expert

I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
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Connecting the Rainbow by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Many readers of this blog, especially parents of children with Down syndrome, are familiar with Reece's Rainbow. In case you're not familiar, RR is a ministry that ... Read on »
Starting over . . . sort of by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Well, Eun has officially been canned. At least by our family. I left our SC a voice mail message last Friday and followed it up with this email yesterday: ... Read on »
In the Wise Words of Mr. Rogers . . . by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome "Part of the problem with the word disabilities is that it immediately suggests an inability to see or hear or walk or do other things that many of us take for gran ... Read on »
Bullseye by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Sandra from DS New Mama sent this article to me today: Perfectly Imperfect. Jennifer Graf Groneberg says it so much more eloquently than I've ever been able to man ... Read on »
Two things by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I have gotten so many comments about the shirt! I meant to throw in there that it's symbolism is twofold: first of all, Michael is a huge Stones fan, soooo. T ... Read on »
Hearts and Ears by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Thought I'd document for posterity that Finn had an appointment with the pediatric cardiologist this morning. He's had a small ASD since birth, but it was so small ... Read on »
The Tongue by Lisa Patient Expert 1 Comment Posted in: Blog Posts in Down Syndrome It wasn't so long ago that I still fretted, wondering if people who look at Finn could see that he has Down syndrome. A lot of people have been surprised to find o ... Read on »
Things that make me go "Hmmmm . . ." by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Eun, Finn's PT, has not been here since the first week of December. She said that she would call after the first of the year to schedule our next PT session. It's now two ... Read on »
Update by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome So, ummm, that letter I sent to that person who (repeatedly) dropped the R-word on us recently. She got my letter and left a voice mail message a couple days ago saying th ... Read on »
I have some really bad news for all you other parents. by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome My kid is cuter than yours. I mean, really . . . is there any question? Read on »
The R-word(s): Let me be perfectly clear by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome That person who dropped the R-bomb on Michael and me the other night is someone with whom we have a long-term, professional relationship. A relationship which is now ... Read on »
A losing battle by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome There it was again last night: the R word, dropped like a bomb out of a clear blue sky. This time it came from the lips of someone I have a great deal of respect for, som ... Read on »
Hurts and Hopes by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome It still hurts sometimes to see other babies close in age to Finn - younger even - and to see all the things they do that Finn doesn't do. I try to focus on Finn ... Read on »
Check this out by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I'm a little late on this, but look what Mamapedia published today: What is Normal? I'm honored! Read on »
Guitar Hero by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn likes music. I mean, he really likes music. From the time he was a little baby, he has seemed to be drawn to music, and since he became mobile, first by rolling, and ... Read on »
Thoughts on evals by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome About those pesky developmental evaluations . . . I've been thinking a lot about this. I mean, Finn being all grabby with the boobs is funny and all, but in all seriousnes ... Read on »
Object Permanence by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Of late, Finn has become very grabby with the . . . err, boobage. He becomes very focused and determined to access them no matter what locale we happen to find ourselves i ... Read on »