I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
Kevin's Speech, live
by
Lisa
Posted in: Blog Posts in Down Syndrome
Tonight was the night Kevin gave his speech at school, to a packed audience of peers and families. He did a wonderful job, and despite a brief, unfortunate technic ...
Read on »
A New World
by
Lisa
Posted in: Blog Posts in Down Syndrome
Today is Spread the Word to End the Word Day, a campaign spearheaded by the Special Olympics to put an end to the use of the words "retarded" and "retard." I and ...
Read on »
Beaten Down
by
Lisa
Posted in: Blog Posts in Down Syndrome
After today's session with Finn's new "infant stim" therapist, I've decided to can her. As I posted last week, she was a half hour late the first time she came. ...
Read on »
Baby Steps
by
Lisa
Posted in: Blog Posts in Down Syndrome
Finn took his very first cruising steps today! Check it out:
This is actually footage of his second go at it today; he did it for the firs ...
Read on »
Therapy Schmerapy
by
Lisa
Posted in: Blog Posts in Down Syndrome
I think I am stuck in this mindset that the therapists are the enemy. Well, maybe that's a little harsh, but I definitely have this us against them feeling.
...
Read on »
Beyond Acceptance
by
Lisa
Posted in: Blog Posts in Down Syndrome
Last night I caught a few minutes of the Olympics. There was a segment in which Bob Costas sat down with Tom Brokaw, and they were talking about former Olympic sno ...
Read on »
Ds Clinic
by
Lisa
Posted in: Blog Posts in Down Syndrome
Recently I learned that the children's hospital Finn spent his first couple of weeks in has recently opened a Down syndrome clinic. That's what the website calls i ...
Read on »
Tada!!
by
Lisa
Posted in: Blog Posts in Down Syndrome
As I came in the house this morning, Kevin said to me, "Hey, Mom, does Finn pull himself up to stand yet?" "No," I said, "Why?" Kevin said, "Well, he just did it a ...
Read on »
No
by
Lisa
Posted in: Blog Posts in Down Syndrome
One of the questions posed to me during the last two of Finn's developmental evaluations was "Does he understand 'no'?" The answer I've given has been that we real ...
Read on »
IFSP meeting
by
Lisa
Posted in: Blog Posts in Down Syndrome
This morning we had Finn's semi-annual IFSP meeting with our service coordinator. Finn was sporting a nice shiner for the occasion (damn table leg!):
Becaus ...
Read on »
Therapy
by
Lisa
Posted in: Blog Posts in Down Syndrome
Things are looking up.
There's this gal who recently joined my book club. She lives in my neighborhood and has twin boys who attend the same school my ki ...
Read on »
What's this???
by
Lisa
Posted in: Blog Posts in Down Syndrome
Okay, I do NOT want to go borrowing trouble. But I've noticed something new and strange about Finn recently. His eyes will kind of roll back, almost like he's loo ...
Read on »
