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Lisa Patient Expert

I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
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Kevin's Speech, live by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Tonight was the night Kevin gave his speech at school, to a packed audience of peers and families. He did a wonderful job, and despite a brief, unfortunate technic ... Read on »
Dress Rehearsal: R-word speech by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Kevin had to do a dress rehearsal today at school for the speech he's giving tomorrow evening, and apparently it went really well. When I picked him up from school ... Read on »
A New World by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Today is Spread the Word to End the Word Day, a campaign spearheaded by the Special Olympics to put an end to the use of the words "retarded" and "retard." I and ... Read on »
Beaten Down by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome After today's session with Finn's new "infant stim" therapist, I've decided to can her. As I posted last week, she was a half hour late the first time she came. ... Read on »
Baby Steps by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn took his very first cruising steps today! Check it out: This is actually footage of his second go at it today; he did it for the firs ... Read on »
Bare Necessities by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Sorry, couldn't resist. Read on »
Therapy Schmerapy by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I think I am stuck in this mindset that the therapists are the enemy. Well, maybe that's a little harsh, but I definitely have this us against them feeling. ... Read on »
Beyond Acceptance by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Last night I caught a few minutes of the Olympics. There was a segment in which Bob Costas sat down with Tom Brokaw, and they were talking about former Olympic sno ... Read on »
Ds Clinic by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Recently I learned that the children's hospital Finn spent his first couple of weeks in has recently opened a Down syndrome clinic. That's what the website calls i ... Read on »
Tada!! by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome As I came in the house this morning, Kevin said to me, "Hey, Mom, does Finn pull himself up to stand yet?" "No," I said, "Why?" Kevin said, "Well, he just did it a ... Read on »
No by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome One of the questions posed to me during the last two of Finn's developmental evaluations was "Does he understand 'no'?" The answer I've given has been that we real ... Read on »
IFSP meeting by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome This morning we had Finn's semi-annual IFSP meeting with our service coordinator. Finn was sporting a nice shiner for the occasion (damn table leg!): Becaus ... Read on »
In the words of a 13-year-old boy by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome This is a speech Kevin, our oldest son, wrote, and which he will be giving in front of the student body and their families at his school in a couple of weeks. ... Read on »
Politics, the R-word, and good ol' Sarah Palin by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Sigh. I'll be honest. I'm not one much for politics. I probably should be more aware of and invested in what goes on politically in our country, but the ... Read on »
Finn's 18-month well baby checkup by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn and I visited our favorite pediatrician this morning. The highlights: Finn weighs 19 lbs. 8 oz. He's actually lost a bit of weight over the last ... Read on »
Please help find a family for this little girl by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Lera (4) Girl, Born August 7, 2005 Russia I LOST MY FAMILY!! Lera is a gorgeous little girl with blonde hair and blue eyes. She is 4 years old. S ... Read on »
Therapy by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Things are looking up. There's this gal who recently joined my book club. She lives in my neighborhood and has twin boys who attend the same school my ki ... Read on »
What's this??? . . . continued. by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome By last night, I was near frantic about these "episodes" of Finn's. And in all honesty, I was kicking myself for putting it out here on my blog, because the commen ... Read on »
What's this??? by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Okay, I do NOT want to go borrowing trouble. But I've noticed something new and strange about Finn recently. His eyes will kind of roll back, almost like he's loo ... Read on »