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Lisa Patient Expert

I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
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A Special Visit by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Yesterday we got to meet Lisa of Genetically Enhanced ! She was in our neck of the woods on business and stopped by our house for a visit. Such a great girl, that ... Read on »
Strides by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome It seems that I have less and less to say these days here on FJ. I'm still here, but I guess Down syndrome is just not the focal point for me these days tha ... Read on »
Top by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Sometimes - pretty often, in fact, I find Finn doing something that just amazes me. Like this: It sure looks to me like he gets it, don't y ... Read on »
Struggling by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I've been thinking about this whole struggling thing. How Finn has to struggle so much to achieve the things that other kids breeze through. How sometimes it feel ... Read on »
Hand-me-downs by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I have a soft, squishy spot for seeing my little ones in their older siblings' hand-me-downs. This is Joey at 20 months (6 years ago!) - ... Read on »
The R-word: A Different Perspective by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome This morning somebody left a comment on a post I wrote a while back, Beaten Down . Since this person went to the trouble of trolling the internet looking for ... Read on »
Another Connection by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I've been wanting to get my girls into swim lessons. My dear friend, Jen, put me in touch with a local college girl who gives private swim lessons to kids over the summe ... Read on »
How an Avocado Did Me In by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I was going through old pictures last night, reliving Springs and Easters of years gone by. In the midst of it all, I came across these photos: The ... Read on »
A Close Encounter . . . or, My Stalking Finally Pays Off by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I'll admit it: I like to do my grocery shopping on Monday mornings because I know "Linda" (not her real name) works on Monday mornings. She's the girl who bags gr ... Read on »
Ds clinic visit by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Our appointment with our local Down syndrome clinic was this morning. It's really a neurology clinic affiliated with the children's hospital, seeing patients with ... Read on »
Today by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn had OT this morning. I have to say that Emily really offers more than just OT - she works on a variety of things with him including a little speech, a little P ... Read on »
Progression, Regression, and the Inevitable Worry by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn has completely stopped pulling up to standing over the last week or so. Before, he was pulling up to stand on every piece of furniture and surface he could ge ... Read on »
Speech Therapy and Feeding Issues by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome A lot of people have asked me why, at 20 months old, Finn doesn't qualify for speech therapy. I know, it's crazy, huh? It seems like pretty much e ... Read on »
Oral Motor Myths of Down Syndrome by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome There is a really good article here (scroll down to The Oral Motor Myths of Down Syndrome; it's a PDF file, so I can't link directly to it here). It explains in ex ... Read on »
Owchie by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome This morning, Finn bit me: So I poked him in the eye. Okay, okay, it didn't really happen that way. I didn't poke him on purpose! ... Read on »
IFSP by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome We got a copy of Finn's IFSP in today's mail. Sigh. I promised myself months ago that I wasn't going to read these things anymore. Because, really ... Read on »
IFSP by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome We got a copy of Finn's IFSP in today's mail. Sigh. I promised myself months ago that I wasn't going to read these things anymore. Because, reall ... Read on »
A Boy On the Go by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Not only does he stand now . . . He climbs, too. This boy is keeping me busy! Read on »