Health knowledge made personal

Lisa Patient Expert

I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
› Share page:

Posts

Sort by: Most recent | Name
Words by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome A lot of hullaballoo has been, and continues to be, made about the R-word. And I've been right there, shaking my fist, demanding a change in attitude and vocabulary, deman ... Read on »
Down Syndrome Awareness Video by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome In case you missed it via Facebook, check out this wonderful video (And notice who's featured in it!) Read on »
If Only The World Could See Him Through Her Eyes by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome It's interesting to see, with all the kids I have, the alliances that have developed. Finn and Lilah, they're tight, those two. At twenty-one months apart, they're the cl ... Read on »
Good Eats by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Perhaps some (a lot!) of you are growing weary of my posts about Finn's eating. Indulge me anyway! Feeding has been one of the two major, stress-inducing issues we've h ... Read on »
Fed Up With Early Intervention by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn has in-home speech therapy every Wednesday morning at 9:00. Every week his SLP is late - anywhere from 10 to 25 minutes late. Today? Well, today she just didn't sho ... Read on »
Look Who Had Spaghetti For Dinner by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn's repertoir of edible fare - and by that, I mean foods he willingly and enthusiastically eats, and actually chews and swallows with little to no ga ... Read on »
Steps by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome All the waiting has paid off: at just shy of 26 months old, Finn took his very first unassisted steps this morning. Two, to be exact. And I was there to see it! He's ... Read on »
Jennifer Aniston: The R-word Strikes Again by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome It's old news by now, and I contemplated not even addressing Jennifer Aniston's gaff from yesterday, beyond posting about my disappointment on Facebook. I don't know that ... Read on »
IFSP meeting by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Our IFSP meeting was this morning. In a nutshell, blah. I got a copy of Emily's report on Finn at the meeting. I'll just say what I always say: it's disheartening to s ... Read on »
I've seen Deedah, have you? by Lisa Patient Expert 2 Comments Posted in: Blog Posts in Down Syndrome It seems to be the latest buzz in the Down syndrome community. If you don't know about it, check out this trailer I ordered the DVD about a week ago and it came ... Read on »
The Boy In the Mirror by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I love when I catch Finn doing something so cool and unexpected like this Notice how he lets go and stands without holding onto anything for long stretches? I ki ... Read on »
Tests and Screenings by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome When I take Finn to see our pediatrician for regular checkups, the doctor goes down a checklist of things that need to be addressed for children with Down syndrome. Where ... Read on »
Friends by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome One of the most thrilling things is finally getting to meet, in person, someone I've gotten to know online. I've been lucky enough to have had the chance to meet several p ... Read on »
If you think that having a child with Ds isn't fair to the other children in the family . . . by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Daisy, age 5, made this for Finn this morning Translated "I love you Finnian. You are the best baby and Finn you are silly, you silly baby, so this is what you ... Read on »
ECHO Echo echo by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Well, it was that time again, time again for Finn's semi-annual echocardiogram to check on that pesky ASD of his. So off we traipsed to the pediatric cardiology office thi ... Read on »
Look At That Boy GO! by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome CAUTION: If you don't want to hear the utter craziness of a passel of kids, turn your volume down. It's so funny to see Finn upright like this! And I'm once a ... Read on »
Not So Wordless Wednesday After All by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Looks like we've suddenly got a new Service Coordinator. I was informed by letter from our new SC today. What happened to Amber, who has been our SC since Finn was a newbo ... Read on »
Wordless Wednesday by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Looks like we've suddenly got a new Service Coordinator. I was informed by letter from our new SC today. What happened to Amber, who has been our SC since Finn was a newb ... Read on »
Scraps by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome We went on our first ever family vacation the week before last. We packed up the kids and drove up the coast for a few days. It was a wonderful experience for all of us. ... Read on »