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Lisa Patient Expert

I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
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Differences by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Joey went to our local Target a few weeks ago with his dad and came home and reported to me about this woman who works there who is "only about as tall as a shopping cart," he ... Read on »
Disability is Natural: Discussion No. 1 by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome So, I'm finally reading it. I first became aware of it from Beth's blog, and then Jen's, and now it seems as though a lot of fellow blogging parents are reading ... Read on »
Disability is Natural: Discussion No. 2 by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Ahhh, now we get to the heart of the matter: services. At least for me, this is the heart of what's been on my mind for quite a while. Rather than trying to organiz ... Read on »
Disability is Natural: Discussion No. 4 by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Chapter 9 - Therapy: Beneficial Remedy or Toxic Antidote? Although the issue of inclusion has been heavy on my mind lately, a bigger issue for me is therapy, because ... Read on »
Domestic Adoption by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome In the Down syndrome blogging community, international adoption of babies and children with Down syndrome is a well-known reality. Did you know, however, that ther ... Read on »
Done by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome We had our final OT session this morning. Emily asked if we wanted to extend services for a month, and I declined. With the holidays coming up and all, I'd really rather ... Read on »
Down Syndrome Awareness Month: Breast Feeding a Baby With Down Syndrome by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome DISCLAIMER: I do have a decidedly pro-breast feeding bent. However, this post is not intended to judge or criticize anyone who chooses not to, or who for whatever reason ... Read on »
Down Syndrome Awareness Month: Early Intervention/Therapy by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I've been struggling to write this post for a couple of days now, writing it and rewriting it, abandoning it and then restarting. Although this is an important topic that ... Read on »
Down Syndrome Awareness Month: Real Life With a Child With Down Syndrome by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome As Down Syndrome Awareness Month wraps up, I'd like to share some with final thoughts. A little over two years ago, my son was born with Down syndrome. In the early day ... Read on »
Down Syndrome Awareness Month: Receiving the News by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome October is Down Syndrome Awareness Month. Unfortunately, I couldn't commit to taking part in the 31 for 21 Blog Challenge this year (boo!), but there are a few topics near ... Read on »
Down Syndrome Awareness Month: Siblings by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Down syndrome n. congenital disease marked by mental deficiency Really, Webster? A disease? Come on, seriously? My brother is not diseased. He's a healthy kid who ha ... Read on »
Down Syndrome Awareness Month: Stereotypes by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Women . . . they just can't make up their minds. Black people are such good athletes. Jews are naturally frugal. Men - all they care about is their work. Italia ... Read on »
Down Syndrome Awareness Video by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome In case you missed it via Facebook, check out this wonderful video (And notice who's featured in it!) Read on »
Dress Rehearsal: R-word speech by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Kevin had to do a dress rehearsal today at school for the speech he's giving tomorrow evening, and apparently it went really well. When I picked him up from school ... Read on »
Ds Clinic by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Recently I learned that the children's hospital Finn spent his first couple of weeks in has recently opened a Down syndrome clinic. That's what the website calls i ... Read on »
Ds clinic visit by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Our appointment with our local Down syndrome clinic was this morning. It's really a neurology clinic affiliated with the children's hospital, seeing patients with ... Read on »
ECHO Echo echo by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Well, it was that time again, time again for Finn's semi-annual echocardiogram to check on that pesky ASD of his. So off we traipsed to the pediatric cardiology office thi ... Read on »
Encore by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome So, guess who's back to nursing after a weeks-long hiatus? Yep, the Little Mister. I feel compelled to confess this since I made such a big, sad deal about him weanin ... Read on »
Enough by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Louise of Bloom, put these two links in a comment here, but I would like to highlight them because they are so meaningful, and I hope everyone will read them and gain somethin ... Read on »
Everything in its own time by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Take a look at this: This is a first for Finn. It happened tonight and I was there to see it! He's been proficiently cruising - stepping sideways - a ... Read on »