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Lisa Patient Expert

I am the mother of six children, the youngest of whom has Down syndrome. My blog chronicles our family's experience having a baby with Down syndrome from the day of his birth to the present day.
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"High Functioning" by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome This is a topic that has come up on several blogs I follow recently, and I've been trying to process my own thoughts and feelings on this. It was brought up again this mornin ... Read on »
10 months, a day late by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Yesterday Finn turned 10 months old, but I didn't get around to taking pics until today. He's still not feeling completely up to snuff, as evidenced by the circles under his ... Read on »
15-month well-baby checkup by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome While we were waiting to see the doctor, Finn entertained himself with the paper on the exam table. He had great fun with that :) So, here's the lowdown: at 1 ... Read on »
3:30 a.m. by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome That's what time I have to get up in the morning in order to leave the house by 4:30 a.m. to be at the surgery center by 5:00 a.m. so Finn can have tubes put in his ears at 6: ... Read on »
9-month checkup and other stuff by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn had his 9-month well baby visit this morning (a little late, as he's almost 10 months now!). It really was uneventful. His weight and height are both in the 50th percen ... Read on »
A Boy On the Go by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Not only does he stand now . . . He climbs, too. This boy is keeping me busy! Read on »
A Close Encounter . . . or, My Stalking Finally Pays Off by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I'll admit it: I like to do my grocery shopping on Monday mornings because I know "Linda" (not her real name) works on Monday mornings. She's the girl who bags gr ... Read on »
A couple-few things . . . by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome ~ In honor of this being Down Syndrome Awareness Month (and in honor of the chill the nights have taken on lately), I splurged on one of these gorgeous quilts for Finn. Take ... Read on »
A different twist by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I ran into the grocery store today to pick up a couple of things. Inside I saw a man with Down syndrome (a shopper, not a store employee). He looked to be in his 40s probabl ... Read on »
A Home for Lily by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I'm a smidge late on this, but wanted to get the word out nonetheless. My dear friend, Michelle, of The Zoromski Chronicles, and her family are in the process of ado ... Read on »
A Long Overdue Post About What Finn's Up To by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Boy, life sure has a way of getting in the way of blogging, huh? I can sum up what Finn is up to these days in one word: TROUBLE. In a nutshell, he's into everything. An ... Read on »
A losing battle by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome There it was again last night: the R word, dropped like a bomb out of a clear blue sky. This time it came from the lips of someone I have a great deal of respect for, som ... Read on »
A microcosm of an ideal world by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I've been watching my kids lately. I mean really watching, paying attention to their play and how they interact with each other and Finn. Now that Finn is mobi ... Read on »
A Minor Surgical Procedure . . . and Skin by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn had a little procedure yesterday morning at the outpatient surgery center: he had two cysts removed from the back of his ear. It wasn't a biggie, although it never ge ... Read on »
A Mixed Bag by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome I feel like I'm losing friends . . . or losing my ability to relate to people on the same level I did before. Before Finn. Before cancer, even. And I am therefore distancin ... Read on »
A New World by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Today is Spread the Word to End the Word Day, a campaign spearheaded by the Special Olympics to put an end to the use of the words "retarded" and "retard." I and ... Read on »
A Post About Boobs by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome See, I knew that would get your attention ;) Okay, this is actually about breastfeeding. Breastfeeding woes, specifically. Finn and I are having issues. He's decide ... Read on »
A shit week by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Finn woke up yet again last night burning up with fever and I sat up with him for half the night as he whimpered and cried. His cough sounds terrible, and nothing I did seemed ... Read on »
A Special Visit by Lisa Patient Expert Posted in: Blog Posts in Down Syndrome Yesterday we got to meet Lisa of Genetically Enhanced ! She was in our neck of the woods on business and stopped by our house for a visit. Such a great girl, that ... Read on »