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Lisa

Suffern, New York
I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral... Full Bio
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Testified In Favor of Connecticut's Cytomegalovirus Bill, HB 5525

Brenda K. Balch, MD, Connecticut American Academy of Pediatrics Early Hearing Detection & Intervention Chapter Champion. She has a strong...

States currently hearing a congenital cytomegalovirus bill

This link is very helpful and includes the link to your own representative, regardless of your state http://stopcmv.org/en/ help/bills.html

CT Magazine featured congenital Cytomegalovirus, comments by Dr. Demmler-Harrison and HB 5525

As of this morning, the Conneciticut Public Health Committee hasn't voted on this yet. You can read the article through this link:...

Fri, 2/20, CT Public Health Committee Holds Two CMV Bill Hearings

Do you want to help prevent birth defects through education? Can you testify in Harford, Connecticut, about the two congenital cytomegalovirus...

News 8, Connecticut Style: Preventing Congenital CMV During Pregnancy

Preventing Congenital CMV During Pregnancy WTNH 2 Feb 09, 2015 · ... pregnant and what expectant mothers should know...

Latest Activity

process-indicator
MikeG wrote on Lisa's Whiteboard. Mar 19 2010
Lisa updated their profile. Jun 10 2009
Lisa updated their profile. Jun 10 2009
Lisa's Whiteboard
Mar 19 2010 by MikeG

Hi Lisa ... I am the father of 17 year old who was born with CMV.  Like you, I have never heard of it.  His symptoms would be classified as severe but he has shown through many events that he is tough as nails.

I am near the end of writing a book about the first 5 years of his life, not so much focused on CMV but on the journey, which was very tough those first few years.

Reading some of your excerpts, I know that we have a lot in common.  We should share our experiences sometime.

Take care.

-Mike

 

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