Health knowledge made personal

Lisa

Suffern, New York
I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral... Full Bio
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Parent of a Congenital CMV Child?

The following document, How Writing and Scriptures Got Me Through the Shock of Congenital CMV ,  contains my  inner struggles of raising my...

Getting Thin and Famous to Promote Congenital CMV Awareness

Many of you know my kooky attempts to get thin and famous so people will listen to my message about congenital cytomegalovirus (cCMV)...

Cost of Congenital CMV and your state

Hi! Many of you know me as the mother of a child who struggled with the effects of congenital cytomegalovirus (cCMV) until she died at...

CT House Passed Bill 5147:cytomegalovirus education

HB 5147 : AN ACT CONCERNING NEWBORN SCREENING FOR CYTOMEGALOVIRUS AND ESTABLISHING A PUBLIC EDUCATION PROGRAM FOR CYTOMEGALOVIRUS. Monday,...

Urgent Request: House has 3 days left to vote

House Bill 5147 Please urge the Speaker of the House, the Public Health Committee Co-Chairs, sponsors of the bill and your local...

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process-indicator
MikeG wrote on Lisa's Whiteboard. Mar 19 2010
Lisa updated their profile. Jun 10 2009
Lisa updated their profile. Jun 10 2009
Lisa's Whiteboard
Mar 19 2010 by MikeG

Hi Lisa ... I am the father of 17 year old who was born with CMV.  Like you, I have never heard of it.  His symptoms would be classified as severe but he has shown through many events that he is tough as nails.

I am near the end of writing a book about the first 5 years of his life, not so much focused on CMV but on the journey, which was very tough those first few years.

Reading some of your excerpts, I know that we have a lot in common.  We should share our experiences sometime.

Take care.

-Mike

 

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