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Lisa

Suffern, New York
I am a mother who was not warned by my doctors how to prevent the #1 viral cause of birth defects--congenital CMV (cytomegalovirus). My daughter Elizabeth was born disabled as a result and now my mission is to warn others how they can protect their unborn children--from CMV and from other viral... Full Bio
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Sample Letter to Connecticut's Public Health Committee

The following is a sample letter you can send to the Connecticut Public Health Committee. It was drafted by  02/28/2014 Sara Doutre , who was...

Subject: HB 5147 – Cytomegalovirus (CMV) Public Education Program

I sent the following letter to the following on Connecticut's Public Health Committee (if you live in Connecticut, you will want to do this too,...

How to Get States to Follow Utah's cCMV education

Now that Utah has passed a law making congenital cytomegalovirus (CMV) education mandatory, we in other states can take their work and pass it on...

I'll Be Home For Christmas 2013

I update my blog every year with this message and photo of the empty chair we place beside our fireplace (you can watch Elizabeth and her dog...

Babies with no Congenital CMV Symptoms Can Still Show Mental Delays Later

See: http://www.prweb.com/releases/2013/12/prweb11404411.htm

Latest Activity

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MikeG wrote on Lisa's Whiteboard. Mar 19 2010
Lisa updated their profile. Jun 10 2009
Lisa updated their profile. Jun 10 2009
Lisa's Whiteboard
Mar 19 2010 by MikeG

Hi Lisa ... I am the father of 17 year old who was born with CMV.  Like you, I have never heard of it.  His symptoms would be classified as severe but he has shown through many events that he is tough as nails.

I am near the end of writing a book about the first 5 years of his life, not so much focused on CMV but on the journey, which was very tough those first few years.

Reading some of your excerpts, I know that we have a lot in common.  We should share our experiences sometime.

Take care.

-Mike

 

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