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Lisa Harvey Vittek

Rocklin, California
My personal blog, http://www.cureforkayla.com, is dedicated to my daughter Kayla Vittek who was born with congenital myotonic dystrophy. Myotonic dystrophy, aka: myotonic muscular dystrophy, is the most common form of muscular dystrophy and affects 1:8000 people worldwide. It is a degenerative... Full Bio
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Stanford Medical Students Learn About Myotonic Dystrophy First Hand by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Left to right: Jane Hull Harvey, Lisa Harvey, Kayla Vittek (front), Dr. John W. Day and Dr. Gilbert Chu Kayla, my mom Jane and I traveled to Stanford Medical ... Read on »
DOCTORS TREAT MULTIPLE GENERATIONS AT STANFORD CLINIC by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health PALO ALTO, Calif. (KGO) -- For 9-year-old Kayla, a recent ride on a surfboard at a special program in Santa Cruz, was something of a miracle. Born with a neu ... Read on »
Clinical Trials for Myotonic Dystrophy Have Begun by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health ISIS Pharmaceuticals is developing a drug (ISIS-DMPKRx) to treat Myontonic Dystrophy Type 1 (DM1, also called Steinert’s Diseases). DM1 is a dominantly inherited, degenerat ... Read on »
Kayla Take Capitol Hill by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health On February 25th, Kayla and I traveled to Washington DC to testify at a Congressional Hearing to support the passage of the reauthorization of the MD-CARE Act. It was a li ... Read on »
Kayla is making an impact by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Well, I'm glad to see that Kayla is continuing to make an impact. She inspires me every day to be a better mom. TREAT-NMD recently used some of Kayla's pictures in their br ... Read on »
Do You Lean In? by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Ok, so how have another 2 years flown by and I haven't found time to write? I have so much to say, just not enough time to put it down. In the past few years, I hav ... Read on »
"Thank You For Kayla!" by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health It has been a long, long time since I've written in my blog. So many people have asked how Kayla is doing and many were worried that my lack of blogging meant that Kayla wa ... Read on »
Late Night Ramblings by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Well, it's been on tough year as you can tell by my lack of blogging for the past 11 months. I've started to write a least a dozen times over the last year but have really ... Read on »
Kayla Celebrates "The Spirit of Difference" by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health A 6-Foot Image of Kayla Vittek Celebrating "The Spirit of Difference" with Medical Students in Doha, Qatar Kayla continues to bring so many blessings to my life. ... Read on »
How to Empower a Child with Therapeutic Horse Therapy by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Kayla was recently highlighted in two videos about horse therapy. The Bay Area Equestrian Network did a story on how this therapy is beneficial to children with special ne ... Read on »
Kayla Met Her Favorite American Idol, David Archuleta, Backstage After His Concert Tonight by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Tonight was a night that we will never forget. Kayla was invited to go backstage and meet her all-time favorite American Idol, David Archuleta, tonight. Thi ... Read on »
No Turkey Today But Feeling More Thankful Than Ever On This Thanksgiving Day by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Well, I've been working a lot lately as running a non-profit means doing fund raising campaigns during the holidays. Well, I got so busy yesterday stuffing and fluffing env ... Read on »
No Turkey Today But Feeling More Thankful Than Ever On This Thanksgiving Day by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Well, I've been working a lot lately as running a non-profit means doing fund raising campaigns during the holidays. Well, I got so busy yesterday stuffing and fluffing e ... Read on »
The Vittek Family on the 2009 MDA Jerry Lewis National Telethon by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health I have been promising to post the videos from our telethon appearances at the Las Vegas Muscular Dystrophy Association (MDA) National Telethon this summer and I finally rece ... Read on »
Videos of our 2009 MDA National Telethon Appearances by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health I have been promising to post the videos from our telethon appearances at the Las Vegas Muscular Dystrophy Association (MDA) National Telethon this summer and I finally rece ... Read on »
"Ride To Walk" Therapeutic Horse Therapy Program Loses Government Funding by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health I wanted to share a story that aired on Sacramento's Channel 10 this morning about Kayla's Horse Therapy, "Ride To Walk". Kayla was one of two kids highlighted in the article ... Read on »
"Ride To Walk" Therapeutic Horse Therapy Program Loses Government Funding by Lisa Harvey Vittek 1 Comment Posted in: Blog Posts in Children's Health I wanted to share a story that aired on Sacramento's Channel 10 this morning about Kayla's Horse Therapy, "Ride To Walk". Kayla was one of two kids highlighted in the artic ... Read on »
Kayla's Debut on National TV for the MDA Jerry Lewis Telethon This Weekend by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Dear Friends, So much has happened in the last month and I keep thinking about blogging but just haven't been able to find the time. Well, this weekend I have someth ... Read on »
Kayla's Debut on National TV for the MDA Jerry Lewis Telethon This Weekend by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health Dear Friends, So much has happened in the last month and I keep thinking about blogging but just haven't been able to find the time. Well, this weekend I have somet ... Read on »
In Loving Memory of Kim Dae-jung, Former President of South Korea by Lisa Harvey Vittek Posted in: Blog Posts in Children's Health My heart is heavy tonight after hearing about the loss of a dear family friend, Former President President Kim Dae-jung: http://www.cnn.com/2009/WORLD/asiapcf/08/18/skorea.kim ... Read on »