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Lily's Dad Patient Expert

Our daughter Lily Bliss was born in June 2007 with profound hearing loss. At 10 months old, she became one of the youngest in Nebraska to receive bilateral cochlear implants. This blog is the story of our hearing journey and the proof that Life really is Bliss.
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AB's new BTE and eletrode by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness New information is coming out on Advanced Bionics' new Behind the Ear (BTE) processor.  Check AB's website for all the latest details.  Also reports of a n ... Read on »
Neptune Batteries - My discovery by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness I can't believe I haven't posted my amazing discovery about longer-life AAA batteries for the Neptune.   Lily wears bilateral Neptunes and also typically w ... Read on »
Snowing again with Angels by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness It's snowing again!  Time for snow angels.  Look closely at the reflection in the window behind Bodie's head.  Sister is always watching.  :)  Maybe Bodie' ... Read on »
Holidays - Looking back and forward by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness We've made it through all the holidays.   For some reason it felt like the best holiday season yet.  Bodie turned one right before Christmas and we can alr ... Read on »
Bodie's Language by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Bodie's language has exploded.  He's added "Go" and "woof" and lots of beginning sounds to words like book and bowl.  He has clearly built a large receptive voc ... Read on »
Music perception - What can Lily hear? by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness I had a wonderful discussion with one of our blog readers about how Lily might hear the different notes on the piano.  I'm appreciative of her expert explanatio ... Read on »
Test of Auditory Processing Skills by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness At our last audiology visit, Lily took the test of Auditory Processing Skills-3 (TAPS-3) Subtest 8 - Auditory Comprehension.  Basically, the audiologist started b ... Read on »
Music Lessons by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Lily has started piano lessons.  She's been begging to play for a while and now has a month of training under her belt.  A few more lessons and we'll post a vid ... Read on »
Lily is thinking about the future by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness After volunteering at Lily's school, I saw this on the wall.  It was by a big sign that said, "The Class of 2025.  When I grow up, I...."   I have no doubt that ... Read on »
Bodie update - He's a talker like his sister by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Bodie's language is growing like crazy.  With such ease, he uses a number of words like dog (ga), dada, more, up, baby, Hi and mama on a daily basis.  He loves ... Read on »
Taking the Stage! by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Last week we attended a performance ofJuggleMania and Shoehorn.  After selecting a variety of kids from the audience, Lily was picked to come on stage.  I think ... Read on »
Lily's Report Card by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness I'm posting part of Lily's report card to give hope and motivation to parents starting on this Hearing/Cochlear Implant journey.   Although Lily has just co ... Read on »
AB T-comm Review by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Interesting Advanced Bionics T-Comm review at Cochlear Implant Help .   Read on »
Halloween Adventures by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Halloween is the perfect holiday.  Do as much or as little as you want.  Live in the moment.  Enjoy the fall. It's been absolutely beautiful and we've been busy ... Read on »
Hear to Learn Pilot Project - A Dream! by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness For the last few years, Lily's former SLP and I have been dreaming about soundfields (aka Classroom Audio systems) and the power they have in changing kid ... Read on »
Sonova Report on Advanced Bionics' future products and other good stuff by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Check out Sonova's report (AB's parent company - pg 36-41) from their recent Investor and Analyst meeting. It highlights product rollout strategies, product ... Read on »
New T-Comm for Neptune Available by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Advanced Bionics is pleased to announce that the T-Comm™ accessory is now available in the United States and Canada. A convenient new accessory for the Neptune™ ... Read on »
Genetics and Environment to Blame by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Genetics and environment are more often to blame for poor CI performance according to new research  in the Hearing Journal. Read on »
Homesteading and History - Creating experiences for learning by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Took a little road trip to Homestead National Monument near Beatrice, Nebraska, which celebrates The Homestead Act of 1862.  By giving government land to indivi ... Read on »
Research about timing of pediatric cochlear implantation by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Here are three studies making the case for early implantation.  Lily was implanted at 10 months of age.  If we did it again, we'd try and get her implanted much e ... Read on »