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Lily's Dad Patient Expert

Our daughter Lily Bliss was born in June 2007 with profound hearing loss. At 10 months old, she became one of the youngest in Nebraska to receive bilateral cochlear implants. This blog is the story of our hearing journey and the proof that Life really is Bliss.
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Lily talks about learning to ride a bike by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness At age 5, Lily's training wheels have come off and she is riding independently.  Here's an interview with Lily about how she learne ... Read on »
Almost done with Kindergarten by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness A field trip to the park.  How is Kindergarten almost over?   Read on »
Hearing is all about the brain by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Good article on How the brain processes auditory signals .  It's not that easy.   Read on »
Phonak's new Roger by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Exciting new update by Phonak with Roger.  "a new digital standard that bridges the understanding gap, in noise and over distance, by wirelessly transmitt ... Read on »
Oberkotter Foundation establishes new national center for professional learning in LSL by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Oberkotter Foundation plans to establish a new national center for professional learning in listening and spoken language. It will be launched in spring of 201 ... Read on »
EHDI Resource Guide by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Extensive free Resource Guide for Early Hearing Detection and Intervention from the National Center for Hearing Assessment and Management at Utah State University ... Read on »
Amplify - New Parent Group by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness We recently formed a new group in Lincoln for Parents of Children with Hearing Loss, better known as Amplify. Amplify's goals are to support families throug ... Read on »
Optimizing cochlear implant programming by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Here's some research I'm watching for improved CI programming. At Vanderbilt University they are performing Image-based frequency reallocation for optimizin ... Read on »
Chinese Cochlear Implant by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Nurotron, a Chinese cochlear implant has been launched in the Chinese mainland for patients aged six and older. In China, there are 28 million deaf people and 30 ... Read on »
Hear to Learn classroom amplification project by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Thrilled to update you on our Hear to Learn classroom amplification project. Here's a short video describing our dream.    ... Read on »
Photo Update by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Making banana bread with Lily's doll Lanie. An sunset trip to the playground. Bath time in the sink. Sledding with the neighbors ... Read on »
Kindergarten science fair project on sound by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Lily's first school science fair was a huge success.  Of course her project was on sound.  Titled "How loud is my school?" Lily and I measured various clas ... Read on »
Pinkalicious - Community Theater by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness We recently attended a fabulous community playhouse show called Pinkalicious starring Lily's good buddy Emma.  In the dedications, Emma gave Lily credit for ins ... Read on »
AB swimming girl by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness During swimming lessons, Lily kept knocking her Neptune waterproof headpieces off with her goggles. We pulled out the AB swim cap and like magic, the headpieces ... Read on »
Cochlear Implant Insertion Video by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Fascinating video of a Cochlear Implant electrode array being inserted into a cochlea.    Read on »
Local lecture by Dr Charles Limb - Building the Musical Muscle by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Great local lecture called "Building the Musical Muscle" by Dr Charles Limb who is a CI surgeon from John Hopkins School of Medicine and a music professor in th ... Read on »
New mapping strategy by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Vanderbilt has developed a new mapping strategy which is worth watching. Adult Cochlear implant users report dramatically better hearing with new process. ... Read on »
Interview with Advanced Bionics Senior Execs by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Facinating interview with Senior Executives at Advanced Bionics by our friend Howard. It will give you a lot of hope for the future of hearing with cochlea ... Read on »
Hockey game bathroom attendant by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness One of our favorite researchers, Mary Pat Moeller of Boystown, calls Lily a fast mapper, meaning she learns something and then immediately puts it into use.   ... Read on »
Dana Suskind, CI Surgeon and language advocate by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Loving this recent article in the Chicago Tribune about Dana Suskind, a Chicago area CI Surgeon and language advocate.  Her research program, outlined below, pa ... Read on »