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Lily's Dad Patient Expert

Our daughter Lily Bliss was born in June 2007 with profound hearing loss. At 10 months old, she became one of the youngest in Nebraska to receive bilateral cochlear implants. This blog is the story of our hearing journey and the proof that Life really is Bliss.
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Dale Sindell at TEDxCibeles by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness As a big TEDx fan, I found this talk by Dale Sindell of TEDXCibeles in Madrid fascinating.  ( TEDx speakers page ) Dale started losing ... Read on »
Science Fair: Social Contagion by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness LIly's second elementary science fair experience was a success.  She studied Social Contagion, the idea that if we observe people who are ... Read on »
Bilateral vs Unilateral CIs in Children by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Interesting study from Ear and Hearing of Spoken Language Outcomes in children with unilateral versus bilateral cochlear implants.   ... Read on »
Vision Loss Boosts Auditory Perception by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness A facinating new study found that when "they kept adult mice in complete darkness for one week, the animals’ ability to hear significantl ... Read on »
Talking to premature babies by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Facinating new study about talking to premature babies by a team at Women & Infants Hospital of Rhode Island and The Warren Alpert Medical ... Read on »
Bonding time by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Reading is a great bonding time for these two, as is playing doctor.  Bodie feels just fine, but he's doing a great job acting like the pa ... Read on »
Lily's U Rock Valentines by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness                   With a no candy requirement, Lily created wonderful "U Rock" valentines for h ... Read on »
Do chickens hold the key for hearing loss by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Chickens have the amazing ability to restore their own hearing, and this trait inspired the Hearing Health Foundation to seek a cure for h ... Read on »
Early Cochlear Implant Switch-On by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Interesting research summary on the Safety and Functional Results of Early Cochlear Implant Switch-On in Children.   That means instead o ... Read on »
Cochlear Implant with no external hardware by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Fascinating article on the future of cochlear implants. Researchers have developed a new, low-power signal-processing chip, which si ... Read on »
Cecilia - A little girl who changed our lives by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness The night before Lily's implantation we watched a marketing video from Advanced Bionics about a little girl named Cecilia who received a c ... Read on »
Lily's quoted in the newspaper by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Reading the morning paper, I saw a story about Lily's elementary school and a new local food program.  Half way through the article I read ... Read on »
Hockey Game by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness We took our annual trip to the Stars hockey game and Lily always insists on making some kind of flag or cheering tool so she "can get on t ... Read on »
Lily's shadow/brother by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Being Lily's brother/shadow has its good times and bad.  Mostly good.  We already have Bodie swimming and he has taken to it incredibly qu ... Read on »
Understanding Harry Potter by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness After being invited to a Harry Potter birthday party, we figured that Lily/we needed to get up to speed on all the lingo, names, potions a ... Read on »
Importance of classroom acoustics - Presentation by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Incredible flash presentation on the importance of classroom acoustics from Northern Illinois University.  It gives the viewer a great ... Read on »
Hear to Learn coverage in eschool news by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness More exciting coverage of our Hear to Learn project in eschool news .  It's a publication for daily tech news and innovation.  ... Read on »
Gene therapy to improve cochlear implants? by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Facinating article on new research that has investigated the possibility of using gene therapy to prevent the death of nerve cells in the ... Read on »
Family uses media effectively to gain cochlear implant coverage by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Great story of a family overcoming an insurance denial by Conventry for Cochlear Implant coverage.  He even received Advanced Bionics.   ... Read on »
CI Wear Shirts by Lily's Dad Patient Expert Posted in: Blog Posts in Hearing Loss & Deafness Love the innovation of the family who created CIWea r, an active wear shirt with pockets for cochlear implants and other electronic devices ... Read on »