
I have mild to severe cGvHD in my arms, hands, legs, feet, stomach and GI track.
I’ve been having ECP treatments, Monday & Tuesday, every other week since 13 September, 2010
Benefits: eosinophil count has been coming down into the normal range, slowly a reduction in GVHD symptoms
Side effects: tired, scaring where the needle is inserted into the vein
http://peterjolson.blogspot.com/2010/09/began-potopheresis-treatments-today.html
http://peterjolson.blogspot.com/2010/08/explanation-is-not-always-necessary.html
http://emedicine.medscape.com/article/1131176-overview
Hope this helps and good luck with the treatments.
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Posted by jasmine
I'm going to have ECP (Extracorporeal Photochemotherapy) to treat GVHD tomorrow. I cannot find useful information about how GVHD patient can benifit from ECP, and the side effect of ECP. Is there anyone know about it?