Health knowledge made personal

Lee Patient Expert

Los Angeles, California
I am a 38 year old female living in Los Angeles who was diagnosed with 4 meningiomas last year. I... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
I had written that tumor girl ... by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I had written that tumor girl passed away, I am her mother and just thought it was important for you all to know Read on »
Tumors by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health The tumors took over and tumor girl passed on Sept 22,2011 Read on »
Leaning by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Been leaning a lot lately so they took me down for an MRI.   I feel like I have gotten worse since i got here but if you think about it I was leaning in the RV and had troub ... Read on »
Bad News And Good News by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health The physical therapy doc told me today that I may have to be wheelchair bound for the rest of my life, but my neurosurgeon said that the chemo therapy treatment has a real c ... Read on »
Started Chemo by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I was told there really was no chemo drug proven to work on Meningiomas, and there isn't, by my new docs are putting my on a drug called Hydrea.  So far no side effects, bec ... Read on »
In Rehab by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Just got moved over to rehab today.  Its nicer here than the rehab in LA.  I have my own room, for now, could get a roommate at any time.  They serve meals in a dining room ... Read on »
News by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Doc came in this morning and said that spinal mri showed a bulging disc but no tumor which is good...  I still don't understand why I seem to be getting weaker on the left s ... Read on »
Pain and Frusatration by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health It took several hours to get the pain medicine today for my back when I got back from the mri.  They had ordered it to go into my IV line, which was taken out a couple days ... Read on »
Finally Getting Docs To Listen To Me by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I just had an MRI of my spine because I told the doc about how my leg weakness is affected by the way I sit and he agreed that it was suspicious that it was a  positional th ... Read on »
In Hospital by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health My parents brought me into the ER yesterday morning because I was having a really tough time moving my left leg and my right eye kept twitching.  I was able to get a CT scan ... Read on »
So Uncomfortable!!!!! by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Everything I eat turns right into fat and settles in my stomach because I can't do anything!  Its so frustrating, I have gained so much weight since the road trip.  And of c ... Read on »
Crying All Time by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I am breaking my parents hearts, I can just tell.  I keep crying because I am frustrated and my parents have to sit here and watch and they can't do anything else to help me ... Read on »
Very Tired by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Yesterday we went to Bear Country, Crazy Horse and drove around Needles Highway, which was really cool.  We were gone most of the day, whiich wouldn't have been a problem, b ... Read on »
Biding My Time by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I'm just sitting here waiting...  waiting for my parents to come back in, waiting for dinner, waiting for the pain killer to take effect, waiting for Susan to come back.  Sh ... Read on »
Hurting... by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I got out of the RV two days in a row and now today I have felt sick all day.  My head is killing me and I have this weird pain all up my left side.  It is not a rare feelin ... Read on »
Miserable by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I cannot for the life of me get comfortable here.  Any way that I try to sit makes me terribly uncomfortable.  The internet here sucks, its free wi-fi, but I even tried teth ... Read on »
Left LA to Live With My Parents by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I am now in South Dakota living with my parents ibn their RV, mom and I arrived yesterday after a 2  1/2 day road trip.  I, my mom, packed up all my stuff, sold it, donated, ... Read on »
Had A Fit Today by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I was trying to put the leg rest of my recliner chair down this morning because I wanted to grab a notebook on a tray table next to me that had a listing of my posters in it ... Read on »
Not Doing Well by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health So I am back up to 8mg of the steroids and I still don't have proper use of my leg and its sooooooo frustrating!  I just want to cry all the time.  The fact that its that ti ... Read on »
UGH!!!!!! by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health My brain feels like it is on fire!!!!!!!  Yesterday was supposed to be the first day without steroids at all and I did ok until the end of the night.  I was trying to get up ... Read on »