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Lee Patient Expert

Los Angeles, California
Blog: http://meningiomablog.blogspot.com/
I am a 38 year old female living in Los Angeles who was diagnosed with 4 meningiomas last year. I... Full Bio
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Getting Nothing Done by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I accomplished nothing yesterday. I sat on the couch all day watching tv, or movies- I got a disc from Netflix that allows me to stream movies directly to my TV from my PS3, ... Read on »
Brace Fitting by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health The guy came back with my brace today. He did nothing to try to fix it but he brought a heat gun with him to try to fix it hear. It now feels a little better, but there is s ... Read on »
New Brace by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I got my new brace on Monday. Michael came and fitted me and we walked around in the hallway and everything seemed fine, then I went to pt and everything seemed fine. Then I ... Read on »
Happy halloween by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health No plans for Halloween this year so I am sitting at home, alone, watching horror movie marathon! Last night I went to a wrap party for a show that I used to work on, it was t ... Read on »
Crying by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I'm sitting here crying because I feel like nothing ever goes the way I want it to. I know that many people probably feel this way, but it really feels that way. I just got ... Read on »
Head is Pounding! by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I felt ok this morning and most of the day but I just finished eating and now my head is killing me! I spent the day watching movies, nothing special, slept in. Slept ok, bu ... Read on »
KAFO by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I got a call this morning from the company that fitted me for the leg brace saying that it was done but that they hadn't gotten word from the insurance company. They asked if ... Read on »
First Day of Treatment is Scheduled by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I got the mask made and they did the ct on the same day and I don't have to go back until my first day of treatment which is different from the video they showed me, but my fi ... Read on »
Here's the Deal by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health So this is the plan. I saw my radiation oncologist today and his plan for treatment is IMRT, Intensity Modulated Radiation Therapy. They will treat the falx, the area of my ... Read on »
Eventually Got My Phone Calls... by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I did eventually get my phone calls, though not necessarily that day. The brace company called later to reschedule for the next day and I had to call my NS's office thenext d ... Read on »
Waiting For Phone Calls by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Today I have spent most of my time waiting for the phone to ring. First of all, this morning the guy who was going to cast my leg for the new brace was supposed to call me bu ... Read on »
More Bad News by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health On Monday I had my mri and on tuesday I had my follow up NS appt, I also got my stitch out. My mri showed two more tumors had grown. Doc said he was going to take the mri to ... Read on »
Got More PT! by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I finally got approved for more physical therapy and I have my next of 12 appointments tomorrow. Hopefully 12 will be enough to get me walking good enough to get back to work ... Read on »
Bionic Leg Brace by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I read about this new leg brace that they are currently testing that is kinda bionic, it uses sensors and stuff to read what the person wearing it is trying to do, like stand ... Read on »
Crying All The Time by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I can't seem to stop crying right now. My mom left Thursday morning and I have been crying ever since, but it started even before that, I cried on Wed at my acupuncture appoi ... Read on »
Headaches! by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health I am getting headaches and they seem to be getting worse, though I have to add I just got my period and I am achey as hell and have not been sleeping very well! I am trying n ... Read on »
Another Stitch by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health So I ended up getting another stitch yesterday, the hole did not heal by itself and I woke up on Thursday with a wet pillow so there was some drainage during the night so I ca ... Read on »
More Antibiotics by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health Saw the NS today and he put me back on the expensive antibiotics. He is almost as paranoid about me getting an infection as I am and since I told him I am having some more dr ... Read on »
Things are Looking Up, But I Still Feel Weird by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health My leg is getting better, I am able to walk up stairs pretty normally now, it takes some effort and some time but I can do it. But my head still feels weird. I still get thi ... Read on »
Balance by Lee Patient ExpertHealth Maven Posted in: Blog Posts in Brain Health My balance is not right. When I woke up from surgery back in july I had a balance issue. When I would sit upright I would tend to lean to the left. That seemed to resolve i ... Read on »
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