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Exercise and Cystic Fibrosis by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The Benefits of Exercising when You Have Cystic Fibrosis The risk of dehydration in patients with cystic fibrosis is a legitimate concern, however, it is not reason enough t ... Read on »
Perpectives On Dying with Dignity by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis This month's installment of "Perspectives On..." is about dying with dignity. The following reflections are courtesy of Allie Stentsland. Her recorded thoughts on her last d ... Read on »
Understanding Allergic Rhinitis by Lauren B. Patient Expert 1 Comment Posted in: Blog Posts in Cystic Fibrosis Allergic rhinitis ranks high on the list of common illnesses. Simply defined, rhinitis is the body's way of responding to inflammation of the nasal passages or sinuses. Inf ... Read on »
Cleaning Your Nebulizer Cups by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Most reusable nebulizers are designed to last up to 6 months. More viscous medications like some antibiotics or improper cleaning may shorten this lifespan. To maintain opti ... Read on »
Mission Statement by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis I have created this site with the following goals in mind: educate, enable, encourage. 1. Educate The latest news and information about clinical trials with CF wi ... Read on »
How a Bronchoscopy Works by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis A bronchoscopy or "bronch" as it is often referred to by patients, is a procedure performed by a pulmonologist when a closer look of the airways and lungs is needed. ... Read on »
How A CT Scan Works by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis A CT (computer tomography) scan is one of several diagnostic procedures that helps give doctors a better idea of what is going on inside your body. Unlike an X-ray, which on ... Read on »
Understanding Allergic Bronchopulmonary Aspergilliosis (ABPA) by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Nearly 5% of asthmatics may develop ABPA at some point. A study of Cystic Fibrosis patients in Australia between 1998 and 2002 reports that nearly 19% had been colonized ( ... Read on »
How a Sweat Test Works by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis It all started with a heat wave in the first half of the last century. A New York area hospital experienced an unusually high number of cystic fibrosis patients requiri ... Read on »
Understanding and Preventing Mold Growth by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Indoor air quality is a topic of great importance to everyone, but particularly to persons with cystic fibrosis. Understanding Mold Reproduction and Growth In o ... Read on »
How Spirometry Works by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The world of cystic fibrosis is full of technical terminology and abbreviations. One such abbreviation is PFTs which stands for pulmonary function tests. PFTs are of criti ... Read on »
Parents: Communicating the Reality of CF to your Child by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis My parents filled me in on the details about CF gradually, rather than dropping a big "by the way, it's terminal" bomb on my head. Here are some thoughts I can share that ma ... Read on »
Understanding Hempotysis by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis In its simplest definition, hemoptysis is blood in the sputum. When it happens for the first time, hemoptysis is more than a little frightening. Hemoptysis is usually a symp ... Read on »
I Want to Hear About Your Job! by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis The world is seeing a new generation of people with cystic fibrosis—adults! According to the Cystic Fibrosis Foundation Patient Registry Annual Data and Re ... Read on »
Financial Assistance: America's Challenge Foundation by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis America's Challenge Foundation (A public, non-profit 501-C-3 charitable foundation) Their Mission Statement is as follows: To assure and provide financial support t ... Read on »
How Vitamins Help by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis People with CF tend to be underweight and malnourished despite ravenous appetites. Furthermore, the mucus causes many gastro-intestinal problems, including malabsorption. Vi ... Read on »
Product Review: The Quake by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis For cystic fibrosis patients, dislodging the sticky mucous in the lung is key to preventing infection. The Quake ®, a portable, easy-to-use, hand-held airway clearance ... Read on »
Understanding Pneumothorax by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Pneumothorax is the technical term for a collapsed lung. In the event of a collapsed lung or suspected pneumothorax medical attention must be sought immediately. People with ... Read on »
Understanding Pancreatic Enzymes by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Definition of an enzyme: (EN-zime) protein made by the ... Read on »
Creatinine by Lauren B. Patient Expert Posted in: Blog Posts in Cystic Fibrosis Creatinine is a product that forms when creatine phosphate, a component of muscle tissue, is broken down. As this creatinine builds up in the blood, it is filtered into t ... Read on »
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