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Advocacy, Awareness, Fundraising and... Socks by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome There's been a lot of concerning news and rumors circulating in the ME/CFS community in the last couple of weeks, leaving some, including myself, feeling a bit discouraged. ... Read on »
XMRV: A Week In Review by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Last week, the Dutch magazine, ORTHO, leaked a copy of a presentation from a lecture given by Dr. Harvey Alter, a highly respected scientist (discoverer of hepatitis C) ... Read on »
Illness & Invisibility by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome ME/CFS has often been referred to as an invisible illness. This is because, for the most part, we don't actually look sick. While the severity of ME/CFS varies from mild to ... Read on »
Determined Spirits by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome In this month's Life Skills Magazine , there is a special "bumper" edition which is devoted and dedicated to all those determined spirits who suffer from ME/CFS/CFIDS. ... Read on »
What About ME? by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome In case anyone thinks I'm being all dramatic with that title... by ME, I don't mean me, of course. I am referring to the illness Myalgic Encephalomyelitis, otherwise regret ... Read on »
As Time Goes By by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Although I've had a lot on my mind to write and share, my health has regretfully been too poor for me to really do so. This being the case, I thought I'd instead show you ... Read on »
May 12th: ME/CFS Awareness Day by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Photo from http://www.rescindinc.org/ Tomorrow, May 12th, is International ME/CFS Awareness Day. Unless you have or know someone with ME/CFS, you probably wouldn' ... Read on »
Happiness & Other Tidbits by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome So, better late than never, right? A few months ago (okay, more like 7 months ago) I was honored to find I had been tagged by Joanne ( of Joanne's Cottage Garden) in w ... Read on »
Eyes Wide Shut by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I went to an all-girl, Catholic high school with only 44 students in my graduating class. Among other essential courses in science, math and english, every student had to t ... Read on »
Everybody Knows About Me by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Sometime last year, I found out about a song called Everybody Knows About Me by the band Cinder Bridge. It is a song about ME/CFS and what those suffering with the illness ... Read on »
An Interview by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Recently, Robyn over at "How are You?" and Other Dumb Questions contacted me in regards to an article she was writing for her college journalism class. The article was to f ... Read on »
A Room with a View by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Being confined to my bed day in and out, I end up spending a lot of time (more than I would like) looking out the window and wishing I could break free. My room unfortunat ... Read on »
Treatments - A Long List by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome If at first you don't succeed, try, try again. Then quit. There's no point in being a damn fool about it. -- W.C. Fields I had to laugh a bit when I first heard this ... Read on »
The F Word by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome So, I’ve been thinking of the F word lately. Not that F word, but the other one.. the one in the acronym of CFS/CFIDS. That dreaded word fatigue. In the thick of a long s ... Read on »
Patience and Renewed Hope by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome This illness requires one to have an enormous and ceaseless amount of patience. Late this past summer, I had a brief period where my CFS (though still obviously extremely ... Read on »
Survivors by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome You often hear the word survivor used to describe someone who has overcome a life-threatening illness or situation. There are survivors of cancer, strokes and heart attacks. T ... Read on »
October 2009 CFSAC Meeting by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I watched/listened to almost all of the 2 day CFS Advisory Committee meeting held on Thursday and Friday of last week. Others have already written a much more in depth comme ... Read on »
What I Miss Most by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Note: This is a journal entry from a couple years ago. I was a bit hesitant to post it here, as it was written in what was a moment of grief for me. I pretty much bare my soul ... Read on »
CFS & XMRV on GMA by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome There are a lot of acronyms in that title. :) Here's a lengthier translation: Dr. Donnica Moore appeared on yesterday's Good Morning America - Health to discuss the newly di ... Read on »
Update on Video Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post a quick update to say that I just got word my video testimony has been accepted, and will be viewed at the upcoming CFSAC meeting (along with other patient te ... Read on »