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Bird Song by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome click to enlarge "A bird doesn't sing because it has an answer, it sings because it has a song." -- Maya Angelou Read on »
Quotes: Finding Expression Through Others by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I love when someone writes or says something poignant that resonates with me, that makes me think of or see life in a new way, or that fills me with a sense of awe an ... Read on »
My October 2010 CFSAC Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome On October 13th and 14th, the CFS Advisory Committee will once again be meeting to provide recommendations to the Secretary of Health on what directions to take in terms ... Read on »
Wonders of Life by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome An April 2003 Journal Entry I had one of those rare but stunning moments the other day where I just felt flooded by the utter profundity of this world – at the miracle of ... Read on »
The FDA/NIH CFS Paper Finally Published by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The long and eagerly awaited FDA/NIH study on CFS was finally published this past Monday. The study reports finding MLV-related viruses in 86.5% of ME/CFS patients, and onl ... Read on »
Whittemore Peterson Institute: An Introduction by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The above video, created by Peter Cairns, was presented at the August 21, 2010 public opening of the Whittemore Peterson Institute (WPI). It describes the inspirati ... Read on »
Hope by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome While the official FDA/NIH study by Dr. Harvey Alter is still awaiting publication , I couldn't help but be excited to see this news article when I awoke this morning Find ... Read on »
Wildlife Window by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post something thoughtful and (hopefully) somewhat inspirational today, but it's been a rough few weeks and I'm just not feeling particularly insightful at the m ... Read on »
Primetime Live: CFS and the CDC by Laurel B. 1 Comment Posted in: Blog Posts in Chronic Fatigue Syndrome The below is a PrimeTime Live news story on ME/CFS from 1996. It covers the history of the original outbreaks in the U.S., as well as the complete lack of a response from th ... Read on »
In Fifteen Years by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I can remember a day when I was 15 years old, sitting on my bedroom floor and writing in my journal. I was upset about something I can no longer recall; no doubt some kind o ... Read on »
Advocacy, Awareness, Fundraising and... Socks by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome There's been a lot of concerning news and rumors circulating in the ME/CFS community in the last couple of weeks, leaving some, including myself, feeling a bit discouraged. ... Read on »
XMRV: A Week In Review by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Last week, the Dutch magazine, ORTHO, leaked a copy of a presentation from a lecture given by Dr. Harvey Alter, a highly respected scientist (discoverer of hepatitis C) ... Read on »
Illness & Invisibility by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome ME/CFS has often been referred to as an invisible illness. This is because, for the most part, we don't actually look sick. While the severity of ME/CFS varies from mild to ... Read on »
Determined Spirits by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome In this month's Life Skills Magazine , there is a special "bumper" edition which is devoted and dedicated to all those determined spirits who suffer from ME/CFS/CFIDS. ... Read on »
What About ME? by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome In case anyone thinks I'm being all dramatic with that title... by ME, I don't mean me, of course. I am referring to the illness Myalgic Encephalomyelitis, otherwise regret ... Read on »
As Time Goes By by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Although I've had a lot on my mind to write and share, my health has regretfully been too poor for me to really do so. This being the case, I thought I'd instead show you ... Read on »
May 12th: ME/CFS Awareness Day by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Photo from http://www.rescindinc.org/ Tomorrow, May 12th, is International ME/CFS Awareness Day. Unless you have or know someone with ME/CFS, you probably wouldn' ... Read on »
Happiness & Other Tidbits by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome So, better late than never, right? A few months ago (okay, more like 7 months ago) I was honored to find I had been tagged by Joanne ( of Joanne's Cottage Garden) in w ... Read on »
Eyes Wide Shut by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I went to an all-girl, Catholic high school with only 44 students in my graduating class. Among other essential courses in science, math and english, every student had to t ... Read on »
Everybody Knows About Me by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Sometime last year, I found out about a song called Everybody Knows About Me by the band Cinder Bridge. It is a song about ME/CFS and what those suffering with the illness ... Read on »