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It's Time To Vote Again! by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Thanks to all who voted for the Whittemore Peterson Institute (WPI) in Round 1 of the Chase Community Giving charity event, which ended earlier this month. The WPI came i ... Read on »
The Magnitude of Time by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome My window is open and I can hear the birds singing as a warm breeze brushes against my face. I watch a squirrel sprint up a freshly budded mesquite tree in search of ... Read on »
Make A Difference: Vote for the WPI by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Thank you for all your kind and supportive comments in response to my last post. I continue to be offline even more than usual as I recover from recent setbacks and ongoing ... Read on »
The Remaining Sunlight by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome When I first started this blog, I wanted to find a way to tell my story and speak its harsh reality while still being sure to maintain a sense of hope and optimism. My prim ... Read on »
Becoming Visible: Advocacy and Awareness by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome There are several new ME/CFS awareness and advocacy efforts currently in place that I wanted to share with you. First, Dominique at 4 Walls and A View has just launched ... Read on »
What Dreams May Come by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome As I've mentioned in previous posts, I fell ill with mononucleosis on New Year's Eve 1996. It was this infection that so suddenly initiated what ultimately grew into a ... Read on »
New Video: What is ME/CFS? by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Due to my health, the above video took me a little over 4 months to complete. I created it in the hopes that it might help, even in just a small way, to increase ... Read on »
New Video: What is ME/CFS? by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome **Update:  In light of recent , I've decided to remove the above video, as it contained information that has now been refuted.  An updated version, completed in Aug ... Read on »
Christmas and M.E. by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The latest edition of Life Skills Magazine has a wonderful bumper edition intended to help raise awareness about ME/CFS. The special edition "Christmas and M.E." includes ... Read on »
Finding Grace When "Life is Hard" by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome When I was a little girl, I remember often being told by a variety of adults that "life is hard." This was most typically said when I complained about something I saw as te ... Read on »
Bird Song by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome click to enlarge "A bird doesn't sing because it has an answer, it sings because it has a song." -- Maya Angelou Read on »
Bird Song by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome click photos to enlarge "A bird doesn't sing because it has an answer, it sings because it has a song." -- Maya Angelou Read on »
Quotes: Finding Expression Through Others by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I love when someone writes or says something poignant that resonates with me, that makes me think of or see life in a new way, or that fills me with a sense of awe an ... Read on »
My October 2010 CFSAC Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome On October 13th and 14th, the CFS Advisory Committee will once again be meeting to provide recommendations to the Secretary of Health on what directions to take in terms ... Read on »
Wonders of Life by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome An April 2003 Journal Entry I had one of those rare but stunning moments the other day where I just felt flooded by the utter profundity of this world – at the miracle of ... Read on »
The FDA/NIH CFS Paper Finally Published by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The long and eagerly awaited FDA/NIH study on CFS was finally published this past Monday. The study reports finding MLV-related viruses in 86.5% of ME/CFS patients, and onl ... Read on »
Whittemore Peterson Institute: An Introduction by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The above video, created by Peter Cairns, was presented at the August 21, 2010 public opening of the Whittemore Peterson Institute (WPI). It describes the inspirati ... Read on »
Hope by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome While the official FDA/NIH study by Dr. Harvey Alter is still awaiting publication , I couldn't help but be excited to see this news article when I awoke this morning Find ... Read on »
Wildlife Window by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post something thoughtful and (hopefully) somewhat inspirational today, but it's been a rough few weeks and I'm just not feeling particularly insightful at the m ... Read on »
Primetime Live: CFS and the CDC by Laurel B. 1 Comment Posted in: Blog Posts in Chronic Fatigue Syndrome The below is a PrimeTime Live news story on ME/CFS from 1996. It covers the history of the original outbreaks in the U.S., as well as the complete lack of a response from th ... Read on »