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Small Victories and a Few Sweet Moments by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome It has been quite some time since I posted to my blog. This is in part because I haven't felt well enough to put my thoughts together in any kind of formal, unified manne ... Read on »
Some Resources for Those who are Bedridden by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Years ago, when I first became housebound (and eventually bedridden) with ME, I had very few places to turn.  I was living alone at the time, and while I had some friends ... Read on »
Spring and New Things by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome "I am thankful that in a troubled world no calamity can prevent the return of spring." -- Helen Keller I have always loved the shift of seasons.  Autumn used to be my fa ... Read on »
Survivors by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome You often hear the word survivor used to describe someone who has overcome a life-threatening illness or situation. There are survivors of cancer, strokes and heart attacks. T ... Read on »
Testimony: A Glimpse into Severe ME/CFS by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The upcoming CFS Advisory Committee (CFSAC) meeting will be held in Washington on November 8th and 9th. For those who may not be aware, the CFSAC exists to provide recom ... Read on »
The Bedridden & Stranded by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Reposted from my blog at http://dreamsatstake.blogspot.com   As everyone is no doubt already fully aware, there's a lot of talk out there right now about health care r ... Read on »
The Bedridden & Stranded by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome As everyone is no doubt already fully aware, there's a lot of talk out there right now about health care reform. In my opinion, there is no question that our health care syste ... Read on »
The F Word by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome So, I’ve been thinking of the F word lately. Not that F word, but the other one.. the one in the acronym of CFS/CFIDS. That dreaded word fatigue. In the thick of a long s ... Read on »
The FDA/NIH CFS Paper Finally Published by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The long and eagerly awaited FDA/NIH study on CFS was finally published this past Monday. The study reports finding MLV-related viruses in 86.5% of ME/CFS patients, and onl ... Read on »
The Magnitude of Time by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome My window is open and I can hear the birds singing as a warm breeze brushes against my face. I watch a squirrel sprint up a freshly budded mesquite tree in search of ... Read on »
The Remaining Sunlight by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome When I first started this blog, I wanted to find a way to tell my story and speak its harsh reality while still being sure to maintain a sense of hope and optimism. My prim ... Read on »
These Small Candles by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome One thing I think this illness has taught me over the years is the need to maintain a constant sense of perspective. I can recall healthier days many years ago when I s ... Read on »
Through a Window by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Last spring and early summer, I was able to lie outside for an hour or two for the first time in nearly three years.  It felt glorious.  I hope soon to get another taste ... Read on »
Treatments - A Long List by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome If at first you don't succeed, try, try again. Then quit. There's no point in being a damn fool about it. -- W.C. Fields I had to laugh a bit when I first heard this ... Read on »
Update on Video Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post a quick update to say that I just got word my video testimony has been accepted, and will be viewed at the upcoming CFSAC meeting (along with other patient te ... Read on »
Update on Video Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post a quick update to say that I just got word my video testimony has been accepted, and will be viewed at the upcoming CFSAC meeting (along with other patient te ... Read on »
Waiting From Within by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wrote this poem several years ago, not long after first becoming bedridden  with ME/CFS.   WAITING FROM WITHIN I lie each day beneath the thick covers o ... Read on »
Waiting from Within by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wrote this poem several years ago, not long after first becoming bedridden with ME/CFS. WAITING FROM WITHIN I lie each day beneath the thick covers of my bed, ... Read on »
What About ME? by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome In case anyone thinks I'm being all dramatic with that title... by ME, I don't mean me, of course. I am referring to the illness Myalgic Encephalomyelitis, otherwise regret ... Read on »
What Dreams May Come by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome As I've mentioned in previous posts, I fell ill with mononucleosis on New Year's Eve 1996. It was this infection that so suddenly initiated what ultimately grew into a ... Read on »