Health knowledge made personal
› Share page:

Posts

Sort by: Most recent | Name
The F Word by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome So, I’ve been thinking of the F word lately. Not that F word, but the other one.. the one in the acronym of CFS/CFIDS. That dreaded word fatigue. In the thick of a long s ... Read on »
The FDA/NIH CFS Paper Finally Published by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The long and eagerly awaited FDA/NIH study on CFS was finally published this past Monday. The study reports finding MLV-related viruses in 86.5% of ME/CFS patients, and onl ... Read on »
The Magnitude of Time by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome My window is open and I can hear the birds singing as a warm breeze brushes against my face. I watch a squirrel sprint up a freshly budded mesquite tree in search of ... Read on »
The Remaining Sunlight by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome When I first started this blog, I wanted to find a way to tell my story and speak its harsh reality while still being sure to maintain a sense of hope and optimism. My prim ... Read on »
These Small Candles by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome One thing I think this illness has taught me over the years is the need to maintain a constant sense of perspective. I can recall healthier days many years ago when I s ... Read on »
Through a Window by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Last spring and early summer, I was able to lie outside for an hour or two for the first time in nearly three years.  It felt glorious.  I hope soon to get another taste ... Read on »
Treatments - A Long List by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome If at first you don't succeed, try, try again. Then quit. There's no point in being a damn fool about it. -- W.C. Fields I had to laugh a bit when I first heard this ... Read on »
Update on Video Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post a quick update to say that I just got word my video testimony has been accepted, and will be viewed at the upcoming CFSAC meeting (along with other patient te ... Read on »
Update on Video Testimony by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post a quick update to say that I just got word my video testimony has been accepted, and will be viewed at the upcoming CFSAC meeting (along with other patient te ... Read on »
Waiting From Within by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wrote this poem several years ago, not long after first becoming bedridden  with ME/CFS.   WAITING FROM WITHIN I lie each day beneath the thick covers o ... Read on »
Waiting from Within by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wrote this poem several years ago, not long after first becoming bedridden with ME/CFS. WAITING FROM WITHIN I lie each day beneath the thick covers of my bed, ... Read on »
What About ME? by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome In case anyone thinks I'm being all dramatic with that title... by ME, I don't mean me, of course. I am referring to the illness Myalgic Encephalomyelitis, otherwise regret ... Read on »
What Dreams May Come by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome As I've mentioned in previous posts, I fell ill with mononucleosis on New Year's Eve 1996. It was this infection that so suddenly initiated what ultimately grew into a ... Read on »
What I Miss Most by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Note: This is a journal entry from a couple years ago. I was a bit hesitant to post it here, as it was written in what was a moment of grief for me. I pretty much bare my soul ... Read on »
Whittemore Peterson Institute: An Introduction by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome The above video, created by Peter Cairns, was presented at the August 21, 2010 public opening of the Whittemore Peterson Institute (WPI). It describes the inspirati ... Read on »
Wildlife Window by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome I wanted to post something thoughtful and (hopefully) somewhat inspirational today, but it's been a rough few weeks and I'm just not feeling particularly insightful at the m ... Read on »
Wonders of Life by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome An April 2003 Journal Entry I had one of those rare but stunning moments the other day where I just felt flooded by the utter profundity of this world – at the miracle of ... Read on »
XMRV: A Week In Review by Laurel B. Posted in: Blog Posts in Chronic Fatigue Syndrome Last week, the Dutch magazine, ORTHO, leaked a copy of a presentation from a lecture given by Dr. Harvey Alter, a highly respected scientist (discoverer of hepatitis C) ... Read on »