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Could I forget my kids have Fragile X? Probably not. by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics I read a blog post earlier about a mother of a son with Down Syndrome who had a cashier make an ignorant comment to her about prenatal testing.  The mama set her straight ab ... Read on »
My baby is FOURTEEN today! by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics It happens every day.  Kids get older in a blink of an eye and moms are left wondering how did he get so old?!  That is what I am wondering today.  Drew is fourteen years ol ... Read on »
Learning something of my own by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics I read this cool story on Huffington Post this morning. It reminded me of something that happened on a smaller scale yesterday with Blake. He was outside while our neighbo ... Read on »
Ceiling fan by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics We haven't put our window air conditioners in yet.  The boys came home from school, and I decided I was going to put their ceiling fans on.  Blake was in his room and he saw ... Read on »
Sluggers by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics We had our first practice for Sluggers Little League today.  The first couple years, Drew didn't play at all.  Then he was on Arbaclofen and he was able to play.  He's been ... Read on »
Parachutes by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics I recently heard Ray Comfort tell a story.  It goes like this You and I are on a plane traveling to New York. We get about half-way there when we hear the pilot's voice ov ... Read on »
The "Me Bag" by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Drew had to do a project where he found pictures and glued them to a brown paper bag. The pictures were to represent things that described him or showed things he likes.  He ... Read on »
A Diesel Ducy of his own by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics As many parents of Fragile X know, our guys (and girls!) can be a little obsessed with things.  The professionals call it having high interest areas.  For years, Drew has lo ... Read on »
It's December already??!! by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics The past month has flown by!  We have been doing some renovations to our home.  We put in hardwood flooring and replaced the carpet in the bedrooms and toyroom. We replaced ... Read on »
Bowling! by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Blake went on a reward trip with his class to the bowling alley.  He looked forward to it for a week and had a blast.  His aide sent me a couple pictures from it.  They are ... Read on »
Some nurse he is! by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics I have a sore throat and don't feel the greatest. I was laying on the couch with a blanket and Blake came along and covered me with four or five more. He kissed ... Read on »
Blake and his props by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Blake has always liked having props when he watches television. Today he is watching Yo Gabba Gabba. I discovered him in his underwear (always!), my high heeled half-b ... Read on »
Circus Waffles by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Drew asked for waffles this morning. We were out, but I told him I'd get some and he could have some for a snack after school.  Of course I forgot. But Drew didn't forget. A ... Read on »
Drew Reads his spelling words by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics http://m.youtube.com/watch?feature=c4-feed-u&v=8CDJuc2xAV0 Read on »
An interesting parallel by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Sometimes in the morning when Blake wakes me up, I don't put my glasses on right away.  I can help him get his breakfast without them.  This really bothers him.  He'll sa ... Read on »
An Overnighter With the X-Men by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics My grandma turned 85 on Friday.  We were invited to a surprise birthday party for her in Kentucky at my cousin's house.  We've been busy and didn't put a lot of time into pr ... Read on »
The New Chair by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Awhile back, we were in a furniture store and Blake saw a chaise lounge he loved.  He sat right down and didn't want to get up.  He wanted Eric to buy it for him.  Eric says ... Read on »
First day of school, med changes, etc. by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics Sunday after church, we went to Wendy's for lunch with my sister Kelly, her husband Tony and their son Kyle.   We went there because that's where Drew wanted to go.  He got ... Read on »
Tired by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics My kids' behavior has been quite the challenge this summer.  Yesterday, Drew's aide, Mrs. H. rode with us to the junior high building to visit Drew's classroom. I should hav ... Read on »
Summer is almost over. by Kristie Meyer Patient Expert Posted in: Blog Posts in Genetics School starts back up in twelve days. Twelve. This summer has gone by really fast, as as all summers do. It has not been an especially nice summer, I must admit. With t ... Read on »