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Kodi Wilson

Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He... Full Bio
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Big day tomorrow...Saturday 4/25 by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Our guests are here and we are getting ready for a day of walking, celebrating, and enjoying being around our boy. Check back for pics and commentary from the big weekend. Tha ... Read on »
All's well... by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Thank you to everyone that has sent emails and text messages about checking in our boy. The docs were all smiles after his procedure. Kodi hasn't been able to post bec ... Read on »
Headed in for small surgery in the am by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health We are just asking for extra prayers for the bronchoscope tomorrow morning. It should be routine, but you know our Braden. Anethesia has not always been our friend, and it's n ... Read on »
Busy Time - Healing Fine - SIGN UP by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we found out Braden had THREE different tracheal infections that we are continuing to treat with inhaled meds and added an oral (okay, really g-tube) antibiotic too. But ... Read on »
Scary moment, but all is OK by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden is not always a fan of his sponge bath with daddy - as you can see in the pics. Since Braden has been staying so healthy, I guess it was time for him to rem ... Read on »
Updates and transitions by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So as we celebrate Mardi Gras this weekend, it's been a busy week for us to catch you up on. Since Braden is turning 3 soon, we transition out of our Early Steps program s ... Read on »
Happy Valentine's Day 2009! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health I thought I would take this opportunity to share with you all the things that Braden is now doing, since he has come home on the ventilator and on the vitamin cocktail. ... Read on »
Heart Day is on it's way by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Our little friend JazMyn just couldn't wait to give Braden his valentine's gift - the one she picked out just for him... so we already exchanged our little tokens of lo ... Read on »
New Year, New Us? by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health We have been blessed to have been recipients of a visit from Brad's aunt and uncle Jeannie and Jerry from Pensacola. They were in New Orleans seeing family and a show, an ... Read on »
Back with a sleigh full of presents from KS by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, spending such wonderful quality time with the family was so great this trip. While Braden wasn't up for much moving around, we still managed to see many ... Read on »
Made it to KS... long trip but we are OK by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, a normally 12 - 14 hour trip to KS turned into a 16-hour trip. We "thought" we had planned for everything, but when you are turning your vehicle into a moving PI ... Read on »
Made it to KS... long trip but we are OK by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, a normally 12 - 14 hour trip to KS turned into a 16-hour trip. We "thought" we had planned for everything, but when you are turning your vehicle into a moving ... Read on »
First big SNEAUX in over 50 years by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health It has snowed here in Baton Rouge on Thursday. I joked with some friends that Hell had frozen over, as it snowed in New Orleans too:-) It was the first snow lik ... Read on »
Lessons from Paxton (and Jesus) about life and death by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health I thought I would share with you something that Braden's Aunt Shala shared with me a few weeks ago. She was faced with how to tell her five-year-old about Braden's dia ... Read on »
95th Percentile!!!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we have a few updates for you... some of you know that Braden was born at 21 1/2 inches long, putting him over the 90th percentile at birth. When he was 6 months ... Read on »
Tiny Dancer by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden seems to be finding more energy all the time to try new things. Some of them really crack us up... we feel kind of bad for laughing at our own kid sometimes ... Read on »
Home Routine getting into swing by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we didn't want to "jinx" our return to home, so sorry we've waited to post. Braden has not made the easiest transition. His past ability to adapt quickly seems to ... Read on »
"He's My Son" - home this weekend? by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health It looks like we might get to bring Braden home this weekend if all continues to go well with the vent. Braden seems well by all accounts, but he has lots of lactic ac ... Read on »
Hospital Halloween by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we had another holiday in the hospital, let's hope this will be our last for awhile. We took our little "lord" for a battery test on our new vent, the LTV 950 ... Read on »
The Diagnosis - Leigh's Disease by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health This might be the hardest post we've ever made. We knew this day might come where we may finally get an answer, but not all answers are the ones you want to hear. Brade ... Read on »