Health knowledge made personal

Kodi Wilson

Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Making Transitions by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So after our battle last year to get an emergency slot on the NOW Waiver, most of you know, we are now approved after getting our day in front of a judge, and just this ... Read on »
Medical Fundraiser - Cookbooks! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health THEY ARE HERE!!!!! After two years of forcing myself to measure and actually write down the stuff I make, and gathering some of our most favorite recipes, Br ... Read on »
10-10-10 Reflections by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health As this special date in history occurs, and as Braden's half-birthday approaches, I've been reflecting quite a bit on our life. I certainly understand what it means to ... Read on »
Mito Awareness Week by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Last week I kept up my Facebook posting different snippets about Mitochondrial Disorders. Nothing I could have put together could have been more beautiful than the awes ... Read on »
Looking for New Diggs by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we took a time-out from the blogging for awhile, seems we got a little busy around here! A few groups of friends of ours have recently bought homes, and shared with ... Read on »
Anniversary thoughts & more by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health First family photo Today is my 10-year anniversary with Brad. As I reflect today on my marriage and my child, my mind is really all over the place. Before I married, I d ... Read on »
30th Admit by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health To celebrate our 10 years together, we planned this trip to Saint Lucia in the West Indies, southern caribbean starting two years ag ... Read on »
29th OLOL admit and back home by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health (Braden at OLOL) After 4 1/2 days in the NICU, Braden's medical team agreed we were ready to head back home, and keep treating his 5 trach infections at home with 2 or ... Read on »
Another Mother's Day in the Hospital by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden's calendar buddy & seizure fighting friend, Addie Claire Well, Braden has not been feeling well for about 8 days, fighting the yucky green junk. We began in ... Read on »
FOUR YEARS OLD! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden getting "Happy Birthday" sung to him from the Wilson extended family... Although we celebrated Braden's life at the Seize the Day walk two weeks ago, th ... Read on »
Seize the Day Walk and Birthday Party by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Today we celebrated Braden's FOURTH birthday (can you believe it??) at the Seize the Day Walk. Many friends and family could not make it today, ... Read on »
28th admit to OLOL by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health We brought Braden in on Wednesday, he quit peeing on a regular basis, and was only going once every 12 hours... not at all his usual 8 times a day. It was a bunch o ... Read on »
WISH GRANTED! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So when we were holed up in the hospital in the Fall of 2008 getting Braden's trach, and then his new vent after the first one failed, one of the social workers there h ... Read on »
Better late than never... by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Our Christmas trip home was quite the journey - as most are with us. It was a total "Griswald Christmas" as the craziest little and big things seemed to happen... from the ... Read on »
Winter update by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So as the cold weather finally gets here and looks like it will stick around for awhile, so comes the season for Braden to constantly fight infections. For the past ... Read on »
Another Challenge our Fighter Wins! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So Braden has been very healthy other than the allergies that are getting everyone around here these days. When I had to get up in the night at 3:30 Tuesday morning I was s ... Read on »
Another Challenge our Fighter Wins! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So Braden has been very healthy other than the allergies that are getting everyone around here these days. When I had to get up in the night at 3:30 Tuesday morning I was ... Read on »
Lessons in the fog by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Special thanks to Latacia and Annette for helping work the table at Mistletoe Market As I drove Brad to the airport this morning to attend his grandfather's funeral, ther ... Read on »
Lessons in the fog by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Special thanks to Latacia and Annette for helping work the table at Mistletoe Market As I drove Brad to the airport this morning to attend his grandfather's funeral, th ... Read on »
Rest in Peace - Maj. James C. Patee by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden, Daddy, and Grandpa Patee Brad's grandfather, Major James C. Patee of the US Army passed away early this morning. He was a man of strength, courage, character wh ... Read on »