Health knowledge made personal

Kodi Wilson

Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
Birthday goodies and the SuperMOM weariness by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So I wanted to take time to thank those of you who gave Braden Amazon gift certificates but weren't quite sure what that would get him. Well I've included pictures of Brade ... Read on »
EIGHT IS GREAT!!!! His WARRIOR DNA is winning!!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Today we celebrate the birth of a true warrior, a fighting spirit and angel on earth - Braden. Last March when we were in the hospital several doctors indicated to us ... Read on »
365 Reasons to Celebrate by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Today marks an anniversary we have never been able to celebrate before... 365 days without a hospital visit!! We came close a few times, but we have made it... FINALLY! ... Read on »
Not your typical New Year's celebration by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health As you may know by now, nothing is ever "TYPICAL" at our house, not even New Year's. This year, since we are not traveling at the holidays we have the luxury of having ... Read on »
Saying Good-bye does not get easier by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Living the life of a special needs parent who is active in networking with other families, and making this difficult journey with them... comes with some pitfalls. The ... Read on »
Despite all odds, Braden is STILL doing NEW things!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Those who have followed our journey, know that I don't take something as "fact" for Braden when it comes to doing something that requires cognative ability... until it's be ... Read on »
Mother's Day Blessings by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well mother’s day has come and gone now, but it certainly left me reflective. This year has been a tough one on me, personally. My job has hit some very tough lows and I’ve ... Read on »
Yes, HE IS A WARRIOR - 7 years strong by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health As the months inched closer to us celebrating Braden's birthday, I was confronted with all sorts of emotions, reflections and feelings. Add in that in recent hospital stays ... Read on »
A DAY IN OUR LIFE by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Pic of Braden at the HPC Easter Eggstravaganza I’m starting to face the fact that most of the time I choose to live somewhat in a state of denial regarding the ... Read on »
The Difficult Truth to Share by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health As we continue along this journey with our precious little soul, many of you know the battles we have fought. Sometimes we win, sometimes we lose, and sometimes the ... Read on »
Seahorses by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Brad and I have held a special place in our hearts for seahorses. One summer while in Baltimore, the aquarium had a special exhibit of seahorses. It was a really neat en ... Read on »
Hug them a little tighter by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health I held him a little closer tonight. I took in everything I could about his hair, cherub cheeks, chubby gator paw hands, how sweet he looks when he’s asleep, and of course b ... Read on »
3 Lessons I want to share with you by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health You. Yeah you. I'm talking to you - the parent of a special needs child, or the people around them who know/love/care about them. It's extremely difficult as we juggle nurs ... Read on »
An unexpected Christmas Gift by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health This year has been busy for us - if the lack of blog posts didn't make that evident enough. We've been very busy with our jobs, keeping up with Braden's newest ailmen ... Read on »
HURRICANE ISAAC by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well technically this is Braden's THIRD Hurricane. And each one has had it's share of drama with Braden. The first one was Hurricane Katrina - we found out we were pregn ... Read on »
Make A Wish by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we've been working with Make A Wish for nearly a year, now. We tried getting Braden approved for a warm thera ... Read on »
Thank you 63 Games by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health March has been a great month for us, and April is shaping up in impressive fashion. I have SO MUCH to tell you about, but need to break it up into a few posts to gi ... Read on »
He did something NEW!!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So if you've followed us for awhile, you know that I don't claim anything as NEW behavior unless we've seen it 2 or 3 times as "intentional". Last week, I was carrying ... Read on »
2011 Recap by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Sorry we haven't posted in awhile, but Braden having his own Facebook page makes it very quick and easy to share information. You can see his page at: http://www.facebook.c ... Read on »
Stones... by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Our poor little guy has been battling with these stones for several months now. We've treated the pain and stopped using a drug because of its ability to cause stones. ... Read on »