Health knowledge made personal

Kodi Wilson

Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He... Full Bio
› Share page:

Posts

Sort by: Most recent | Name
A little inspiration from the FROGS by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health These pics are from Braden's first LSU tailgate this weekend, he did great! The purple hat was borrowed from our night-time sitter Eva, and Braden just had to have his ... Read on »
A quick trip to the ER and more results from this week by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health The past two weeks had been without incident, until Braden starting missing the "white coats" again. He was more congested and 'juicy' than normal, so Brad and I decid ... Read on »
A trip to the hospital by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, it had been some time for Braden to be absent from the hospital, but this trip was entirely different. For once, it wasn't a respiratory problem, but a G.I. proble ... Read on »
A weekend trip to the ER by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, Braden has been getting usual August "junkiness" that he gets this time of year. WHile we tried to get into the pulmonologist for 2 days wtih no avail, we went to the pe ... Read on »
ACTHAR Shots by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Today is the third day we have been on our ACTH, and it has already given us some side effects. It seems to have given us some irritability back in our personality, m ... Read on »
All's well... by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Thank you to everyone that has sent emails and text messages about checking in our boy. The docs were all smiles after his procedure. Kodi hasn't been able to post bec ... Read on »
An unexpected Christmas Gift by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health This year has been busy for us - if the lack of blog posts didn't make that evident enough. We've been very busy with our jobs, keeping up with Braden's newest ailmen ... Read on »
And if you like us even more... another vote by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health This one can win us an AMEX card to buy Braden's mito supplements!! By Parenting Read on »
And if you like us even more... another vote by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health This one can win us an AMEX card to buy Braden's mito supplements!! By Parenting Read on »
Anniversary thoughts & more by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health First family photo Today is my 10-year anniversary with Brad. As I reflect today on my marriage and my child, my mind is really all over the place. Before I married, I d ... Read on »
Another Challenge our Fighter Wins! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So Braden has been very healthy other than the allergies that are getting everyone around here these days. When I had to get up in the night at 3:30 Tuesday morning I was s ... Read on »
Another Challenge our Fighter Wins! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So Braden has been very healthy other than the allergies that are getting everyone around here these days. When I had to get up in the night at 3:30 Tuesday morning I was ... Read on »
Another Fighter in the Family by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health This past weekend mommy went to surprise Aunt Shala for her second breast cancer walk. This year marks the second time in two year's that aunt Shala has beat ... Read on »
Another Mother's Day in the Hospital by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden's calendar buddy & seizure fighting friend, Addie Claire Well, Braden has not been feeling well for about 8 days, fighting the yucky green junk. We began in ... Read on »
Another pneumonia while waiting in hospital:-( by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So Thursday we discovered after a chest x-ray that Braden has another pneumonia. He had been running a fever, his skin was looking a little mottled, and Nurse Carr ... Read on »
Answered Prayer - We head to Houston! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health A prayer has been answered for us. I e-mailed Dr. Wilfong on a whim, not expecting to really even hear back from him, and his nurse called to offer us an appointment!! So ... Read on »
Aqua Tots Swim Class by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So this weekend we are headed to Kansas for vacation, so we are so excited to see our family and new cousin Tristen! Cousin Paxton is SO very excited to go swimm ... Read on »
Avoid Medical Mistakes - USE YOUR VOICE!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Most of you know we went to the hospital this month for a “routine” surgery. Since I’ve been at this awhile now – overseeing hospital staff as they provide care for my son, ... Read on »
Avoid Medical Mistakes - USE YOUR VOICE!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Most of you know we went to the hospital this month for a “routine” surgery. Since I’ve been at this awhile now – overseeing hospital staff as they provide care for my so ... Read on »
Baby BOO by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Our own Baby Bee became a bumble bee for Halloween. The suit was warm, so he was quite cozy and ready for a nap in it:-) Our adventures continue as we still haven ... Read on »