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Kodi Wilson

Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He... Full Bio
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"How is Braden?" by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Although modern rules of society have laid this out as a common pleasantry for us to exchange with one another as a follow-up to "hello"... it's really quite a loaded que ... Read on »
"New" Chair, Swimming & Daycare Daycamp by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, it's been a frenzied but fantastic week in the Wilson household! First, our AMAZING therapist and friend Gayla, with the help and advice of our friend Do ... Read on »
"He's My Son" - home this weekend? by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health It looks like we might get to bring Braden home this weekend if all continues to go well with the vent. Braden seems well by all accounts, but he has lots of lactic ac ... Read on »
"How is Braden?" by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Although modern rules of society have laid this out as a common pleasantry for us to exchange with one another as a follow-up to "hello"... it's really quite a loaded q ... Read on »
10-10-10 Reflections by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health As this special date in history occurs, and as Braden's half-birthday approaches, I've been reflecting quite a bit on our life. I certainly understand what it means to ... Read on »
12-7-06 update by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden and parents upon returning from our glorious trip, caught the bug. While mommy & daddy are recovering mostly, poor little guy has a cough that is sticking with ... Read on »
2011 Recap by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Sorry we haven't posted in awhile, but Braden having his own Facebook page makes it very quick and easy to share information. You can see his page at: http://www.facebook.c ... Read on »
28th admit to OLOL by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health We brought Braden in on Wednesday, he quit peeing on a regular basis, and was only going once every 12 hours... not at all his usual 8 times a day. It was a bunch o ... Read on »
29th OLOL admit and back home by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health (Braden at OLOL) After 4 1/2 days in the NICU, Braden's medical team agreed we were ready to head back home, and keep treating his 5 trach infections at home with 2 or ... Read on »
3 Lessons I want to share with you by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health You. Yeah you. I'm talking to you - the parent of a special needs child, or the people around them who know/love/care about them. It's extremely difficult as we juggle nurs ... Read on »
30th Admit by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health To celebrate our 10 years together, we planned this trip to Saint Lucia in the West Indies, southern caribbean starting two years ag ... Read on »
365 Reasons to Celebrate by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Today marks an anniversary we have never been able to celebrate before... 365 days without a hospital visit!! We came close a few times, but we have made it... FINALLY! ... Read on »
7 Week update - June 16 by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Well, we made 7 weeks this week, and we had lots going on. The first good news, was that our bloodwork came back from the extended metabolic panel that the nuerologists sen ... Read on »
8 Week Update by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Today we are 8 weeks old, and have a few updates to share. First the depressing news... the neurologist called today, and although our first metabolic panel came back O ... Read on »
8 Week Update, part 2 by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Yesterday at the pediatrician, we found out that we are 10 lbs!! While we are making progress, we dropped another percentile group... but Mommy feels like now that we are ... Read on »
95th Percentile!!!! by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health So we have a few updates for you... some of you know that Braden was born at 21 1/2 inches long, putting him over the 90th percentile at birth. When he was 6 months ... Read on »
A "Real" Getaway to Florida by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health We headed to Pensacola Friday to enjoy some R&R over the Fall Break. Of course, no trip of ours is ever without some kind of ridiculous story. As we pulle ... Read on »
A "Weekender" in the PICU by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Braden has been ready for some vacation, but unfortunately the little man's idea of what a vacation is supposed to be like is a little skewed due to his vast medical hi ... Read on »
A DAY IN OUR LIFE by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health Pic of Braden at the HPC Easter Eggstravaganza I’m starting to face the fact that most of the time I choose to live somewhat in a state of denial regarding the ... Read on »
A growing boy.... by Kodi Wilson Facebook Posted in: Blog Posts in Children's Health At 18 months, Braden weighed in at 24 lbs and 28 1/2 inches tall. At 19 months, he is now 24 lbs 6 oz and 30 inches tall!! The doc measured him at a mere ... Read on »