Health knowledge made personal
Well, we are no celebrities, just a family going through life and it's ups and downs with a special needs child. Our son is diagnosed with Leigh's Disease, a terminal degenerative disorder which is categorized as a mitochondrial disorder... as it eats away at muscle tissue and brain matter. He also has severe epilepsy, developmental delays, cerebral palsy, reflux, lives on a ventiltor and trach due to floppy airway, and only takes nutrition through a gastric tube. He is outliving his prognosis and we share our journey with anyone interested, and hope to one day not only find a way to stop the progression of this disease, but a cure!