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Kim F. Patient Expert

North East, Pennsylvania
Somewhere around November 18th or 19th of 2007, I started feeling what I thought were Carpal Tunnel symptoms in my right hand. The symptoms included: tingling of my fingers, numbness, and I was having trouble typing. I went out and bought wrist guards, and things designed to help CT patients.... Full Bio
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My Sun Still Rises by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) A short while ago I took a break from M.S.  I didn’t have a choice really.  Another, more powerful, force than the disease began to consume my life, filling me with grief, ... Read on »
When the Spark Fades by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) When I started this blog ages ago, I promised to be honest and sincere about life with M.S.  – all of it.  I threw my heart and soul into my writing – not only to help oth ... Read on »
Wearing Luca Brasi’s Cement Shoes by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) An article has been brewing in the Sunshine for some time.  It’s been a difficult one to write because it means that it’s time for me to address a serious issue that’s ari ... Read on »
Will M.S. Kill Me? by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) It just breaks my heart that the title of this article is the number one search phrase that landed visitors to Sunshine and Moonlight within the last 30 days.  In a way th ... Read on »
They Ride Because the Can: They Help without Knowing How Special They Are by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Just over a month or so ago, on the campus of Edinboro University , some 1,700 bicyclists participated in this year’s Escape to Lake, a daunting bicycle ride throughout th ... Read on »
All This Getting Healthy is Going to Kill Me! by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I don’t want to end up using a cane or rolling around in a wheelchair.  If that’s my destiny, I will certainly accept it, but I won’t go down without a fight.  In addition ... Read on »
There’s a Reason We’re Supposed to Do It Every 28 Days by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS)           People often ask me if I feel “better” now that I’m on Tysabri. Since I’m an official patient-advocate for Biogen Idec, the manufacturer of Tysabri, I’m complete ... Read on »
Seven Amish Buggies and One Dead Pig Reprised by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) We already know that no two M.S. patients are the same.  Amongst all my other issues, I happen to suffer from serious vertigo and motion sickness due to the location of le ... Read on »
Suffering Over Status Updates by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) When I started my new job months and months ago, I posted an update here in the Sunshine letting readers know that my days of daily blog articles would be coming to an end ... Read on »
The Right to Petition by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) By Contributing Writer Needles ‘n Pens As we enter this patriotic season, opening with the solemnity of remembering those who gave their lives to protect our liberties ... Read on »
You Can Contribute to the Guidelines for Stem Cell Research by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Despite having an un-curable and disabling disease, embryonic stem cell research continues to be a hot topic within my extended family. That’s why I’m sharing this informa ... Read on »
M.S. is in the House! by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I was getting caught up on DVR’d episodes of one of my favorite shows, House, over the weekend.  What a better way to recover from a Tysabri infusion.   I was watching the ... Read on »
I Am Myelin Man! by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS)     Wow, now that’s a name I didn’t expect to earn in this lifetime – Myelin Man.  How does one become the M.M.?  Educate yourself about myelin by taking this onl ... Read on »
Advocate for Yourself:Stay Informed by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL STORIES FROM OTHER PEOPLE WITH MS   If you are looking to learn more about MS therapies, the TYSABR ... Read on »
How Do You “Get” M.S.? by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) What triggers MS, and when? While most develop symptoms in adulthood, many scientists believe that people whose genes make them susceptible to MS encounter the unknown t ... Read on »
Mourning Zettie by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) It’s taken me two days to pen this brief article.   The hubby and I thought the process of losing our pup Oboe was slowing passing, slowly becoming easier.   We were sur ... Read on »
The M.S. Technology Collaborative by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) I love technology. My laptop goes with me everywhere I go. I’m studing new media and social media as part of my doctoral level work. But mostly, I find that technol ... Read on »
Duh, I Have M.S. by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Over the last several weeks, I’ve noticed two things: 1.        I’ve added the phrase “Duh, I have M.S.” to my regular vernacular.   Not grammatically correct.   Not ... Read on »
Evading Life’s Stressors on Easter by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Whether you want to call it Murphy’s Law, Karma or just bad-timing, our lives are in a crazy state.   I was reading this past week about the top five-to-ten life stresso ... Read on »
Tripping My Way to a One-Year Milestone by Kim F. Patient Expert Posted in: Blog Posts in Multiple Sclerosis (MS) Yesterday marked month 12 of my Tysabri Travels and I celebrated with a few of my nurses and a cake at the infusion center. Only a small contingent of the staff was on h ... Read on »