That's what she says, anyway, when you find yourself awake at night and sleep is far away and you have the good luck to have a blog. I guess it's the 21st century version of drunk dialing somebody, when you call them up for a brain dump. Except because we're mothers (and, in my case, happen to be a Mormon), we don't drink. So blogging is the next best thing.
(Well, being drunk is probably more fun than blogging, but you take what you can get.)
Not that I have anything too radical to say. In PKD related news, my creatnine is up, which can't be good, but I haven't sat down with anybody to calculate my GFR and all that jazz. So I'm not sure EXACTLY what it means. But I know it means I'm off the plateau I've been enjoying for the last 2 and a half years, so that's kind of a bummer. We'll just have to wait for the next plateau, I guess.
In other non-PKD related news, it's spring around these parts, and it's such a luxurious glorious thing it almost makes a girl feel a little crazy with happiness. My husband planted a dogwood, which is the first tree we've planted in our yard. It's the first thing we've done in 5 years, beyond flower beds and vegetable gardening, that really changes the landscape. It feels permanent. And grown up. Like we're finally pulling things together.
Of course, then I walk into my house, past the chalk drawings the porch and the dirty rocking chair, and come face to face with the dog hair and the toys littering the playroom and the toilet paper my 3 year old has unraveled in the bathroom, and I realize that we're really not all that together after all.
So then I go back outside and pretend I didn't see any of that other stuff.
(I'm excellent at solving problems by ignoring them.)
In body-related news, I went to get my PT eval done today, only to be told that my appt was next week. I brandished the doctor's order at the girl behind the desk and said, "I SWEAR I was told to come in today," and she politely pointed out that the piece of paper I was using as my defense did indeed have the words, "PT appt, 3/25, 9:30am" written on it. And when I say politely, I mean she really could not have been nicer.
Which is to say, I am a dork.
In actual news related news, a local news story is coming out about me on Sunday. It's been kinda fun to tell my story to a reporter, and get my picture taken (although I haven't seen the picture yet, so I may be using a different word than "fun" when I see it). It's funny, because a lot of other diseases are a lot more serious than mine, and while mine doesn't have a treatment or a cure, there is the possibility of a transplant, which can't be THAT bad. I mean, it's not an ideal situation, for sure, but there are lots worse things. So I sometimes have a weird kind of guilt about PKD, like it should take a back seat to bolder, sexier diseases, like cancer and diabetes. But nobody has ever heard of PKD, so it makes a good story. (And my kids are awful cute, so there's that, too.) Anyway, I hope the story will be well received. It was sure fun to work on.
I'm going to try to go to sleep now. The brain dump is complete. Ah, the power of bloggin....
(Well, being drunk is probably more fun than blogging, but you take what you can get.)
Not that I have anything too radical to say. In PKD related news, my creatnine is up, which can't be good, but I haven't sat down with anybody to calculate my GFR and all that jazz. So I'm not sure EXACTLY what it means. But I know it means I'm off the plateau I've been enjoying for the last 2 and a half years, so that's kind of a bummer. We'll just have to wait for the next plateau, I guess.
In other non-PKD related news, it's spring around these parts, and it's such a luxurious glorious thing it almost makes a girl feel a little crazy with happiness. My husband planted a dogwood, which is the first tree we've planted in our yard. It's the first thing we've done in 5 years, beyond flower beds and vegetable gardening, that really changes the landscape. It feels permanent. And grown up. Like we're finally pulling things together.
Of course, then I walk into my house, past the chalk drawings the porch and the dirty rocking chair, and come face to face with the dog hair and the toys littering the playroom and the toilet paper my 3 year old has unraveled in the bathroom, and I realize that we're really not all that together after all.
So then I go back outside and pretend I didn't see any of that other stuff.
(I'm excellent at solving problems by ignoring them.)
In body-related news, I went to get my PT eval done today, only to be told that my appt was next week. I brandished the doctor's order at the girl behind the desk and said, "I SWEAR I was told to come in today," and she politely pointed out that the piece of paper I was using as my defense did indeed have the words, "PT appt, 3/25, 9:30am" written on it. And when I say politely, I mean she really could not have been nicer.
Which is to say, I am a dork.
In actual news related news, a local news story is coming out about me on Sunday. It's been kinda fun to tell my story to a reporter, and get my picture taken (although I haven't seen the picture yet, so I may be using a different word than "fun" when I see it). It's funny, because a lot of other diseases are a lot more serious than mine, and while mine doesn't have a treatment or a cure, there is the possibility of a transplant, which can't be THAT bad. I mean, it's not an ideal situation, for sure, but there are lots worse things. So I sometimes have a weird kind of guilt about PKD, like it should take a back seat to bolder, sexier diseases, like cancer and diabetes. But nobody has ever heard of PKD, so it makes a good story. (And my kids are awful cute, so there's that, too.) Anyway, I hope the story will be well received. It was sure fun to work on.
I'm going to try to go to sleep now. The brain dump is complete. Ah, the power of bloggin....