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Flu or ME/CFS/FMS/(and Gastroparesis) flare? by Kerry K. Patient Expert Posted in: Blog Posts in Parenting Good morning–It feels that way here…a morning that is “good” …following a string of day beginnings that I can’t remember.  We conjecture, my husband and I, that I have the f ... Read on »
Pieces of the Day by Kerry K. Patient Expert Posted in: Blog Posts in Parenting Pieces of the Day Kerry Ryan-Kuhn Tonight I hope to lay dinner on the table Take a seat around it with my people Share chicken-broccoli casserole And pieces ... Read on »
A profound visualization of ME/CFS by Kerry K. Patient Expert Posted in: Blog Posts in Parenting      Profoundly beautiful is this visualization of a poem written by Laurel B.  Laurel has ME/CFS.  She shared this poem with her blog readers, one who was so moved by it, s ... Read on »
“…the measure of healing…” by Kerry K. Patient Expert Posted in: Blog Posts in Parenting   “Of one thing I am certain, the body is not the measure of healing-peace is the measure”     George Melton Read on »
Healing–What is it? by Kerry K. Patient Expert Posted in: Blog Posts in Parenting “What is healing anyway?”  Lynne Morrell, who is a life coach for many with chronic illness, and one of my favorite wise people, wrote abrilliant blog posttoday on this ques ... Read on »
“May Appear…”-Invisible Illness by Kerry K. Patient Expert Posted in: Blog Posts in Parenting     This is Invisible Illness Awareness Week, a time to spread understanding of the many serious illnesses that often don’t show on the outside, in spite of causing great p ... Read on »
Under the Same Roof by Kerry K. Patient Expert Posted in: Blog Posts in Parenting Back when my kiddos were little and my mother-in-law’s five children were newly grown up and out of the house, I remember her saying, that she slept most peacefully when all ... Read on »
Pain Relief or Insomnia? by Kerry K. Patient Expert Posted in: Blog Posts in Parenting Wondering if any of you with ME/CFS have the “opposite” response to medication that I do.  If I have to take a pain medication late in the day, it keeps me up that night.  T ... Read on »
On letting go by Kerry K. Patient Expert Posted in: Blog Posts in Parenting “Letting go doesn’t mean we don’t care.  Letting go doesn’t mean we shut down.  Letting go means we stop trying to force outcomes and making people behave.  It m ... Read on »
Survey, “Tell us what its like…CFS” by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness The CFIDS Association of America is asking us to “Tell us what its like to be you”.  They want to share what we tell them with the medical community and the public so ... Read on »
Link to CFS Survey–oops by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Hi,  the link to the CFS survey in my previous post (”Tell us what its like” from the CFIDS Association of America) was incorrect.  Thank you Perpetualspirit for bring ... Read on »
Awesome MCS article by author Franny Armstrong by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness   “Brighton author describes life in a “chemical free cave”"   Author Franny Armstrong (author of six romance novels) who is “shut-in” with Multiple Chemical Sensitivi ... Read on »
Trying to Get to the Library with a Chronically Ill Mom by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness In the past three days, my seventeen year old daughter and I have tried to get to the library or book store to spend some time together (and find a good book to read.) ... Read on »
“Smile Makers” by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness The Smile Makers by, Shel Silverstein The grungy, grumpy, grouchy Giant Grew tired of his frowny pout And hired me and Lee to lift The corners of his crumb ... Read on »
Keepin’ on a Campin’ by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness I am reclining in our travel trailer, looking out the windows at an incline of huckleberry bushes, boulders and evergreens.  Through the screen door fresh air seeps in ... Read on »
“Man’s Attitude to His Existence” (and Woman to Hers) by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Hello readers of my blog, who I appreciate much, Over the next few weeks (once a week) I’m sharing quotes from one of my favorite sources, Dr. Viktor Frankl. He wa ... Read on »
Taking a “Virtual” Step by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness I’m so happy to have finally taken the step to work with a technically talented duo to update this antiquated blog.  This was a big step for me as my insecurities were ... Read on »
No Ditching Chronic Illness-Weddings, Dinner Out etc… by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Chronic illness tags along, wherever we go, whether we want it to or not.  Tonight I tried to ditch mine in order to go out to a “last day of school”, yearly tradition ... Read on »
Friend Gems/Taking Risks by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness What a whole lot of fun… Tonight I was able to attend a celebration for a treasure of a friend who is moving out of state.  This has been a week of barely being able t ... Read on »