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Five Months Later- Still Moving by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness A year ago I was living in our old house, and was bound to it by the physical challenges of illness.  Today I look out the big beautiful windows of our new home and feel o ... Read on »
Movement-the thrill of it by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness My last post was about the changes with my eyes and finding adaptations to allow me to get back on the computer.  The journey to find help with my eyes ended up leading to ... Read on »
With My Eyes Closed by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Gold becomes constantly more beautiful From the blows the jeweler inflicts on it- Rumi My eyes are closed as I type, as I begin this 2011 journey of learni ... Read on »
A Reluctant Poet- a daughter’s gift by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Happy holidays friends and readers.  With the help of my daughter this poem is posted.  She wrote it last year.  Not one comfortable in the lime-light (or her work being s ... Read on »
Here by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Being here, on a bridge, somewhere between loss of function and having adjusted to it, I find the poem below comforting.  It is about feeling lost, but reminds the reader ... Read on »
Eyes on Hiatus by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness I will never take my eyes for granted again!  Without mine working right, I’m pretty much knocked out of Cyberspace until either they get fixed or I get special equipment ... Read on »
Untitled…CFS by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness I still am despite this with this fighting this under this molded burned touched taught humbled by this uninvited illness engraved upon my life ... Read on »
Two More Down by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness ““Never look down on anybody unless you’re helping him up.”  ~Jesse Jackson I’m sitting in our trailer in a trailer park near our oldest daughter’s apartment.  She is ... Read on »
peace… by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness peace… *(my granddaughter, photo taken by Grandma) Read on »
Purple Sage by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness The purple sage, visible from my window, wait for me to prune their plumes, two minutes in the morning I cut as many as I can until my arms and legs fall limp.  In the eve ... Read on »
Oops…Wrong Stomach (caregiving hazards) by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness My husband went into the kitchen to get me two Naproxen Sodium tablets this morning.  (My neck and its problems have flared.)  My daughter was in the kitchen emptying the ... Read on »
Vertical in the Midst by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Tonight, I whose symptoms flare me horizontal during almost every storm that blows through my life (literally) stood vertical in the midst of a big one tonight. I had enou ... Read on »
U-turns by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Two u-turns in two days…oh,the unpredictability of debilitating chronic conditions and the disappointment they cause, not only for me but for those I love and care about. ... Read on »
dads & chronic illness- “unconquerable souls” by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness This post is in honor of dads who live with chronic illness… dads who balance home, work, parenting, and caring for an ill spouse and/or child and… dads who are ... Read on »
Second Home (chemically safe home) by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness *I am at my “first home” now.  I wrote this a few days ago, but am still feeling the warmth of my “second chemically  safe home”. I lay here in the bed given up b ... Read on »
“oh ya!” by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness “Why do we still try to live as if we’re “normal”?, J asked me in the midst of a long weekend of celebrating our youngest daughter’s high school graduation.  That evening ... Read on »
ME/CFS-Beauty in Desolation by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness A theme has emerged in my writing this week, metaphors of life (and life with ME/CFS) found in astron ... Read on »
Out of Orbit by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Last night as I was falling asleep, my husband had the TV tuned into the History Channel.  I listened to the narrator tell of how an astroid or comet, can enter a solar sy ... Read on »
Murphy May by Kerry K. Patient Expert Posted in: Blog Posts in Chronic Illness Oh what a month this has been.  Murphy and his law have settled into our house and we’re just beginning to accept him with a sense of humor.  This has been a time of chang ... Read on »
A “Cold” in the Mix by Kerry K. Patient Expert Posted in: Blog Posts in Parenting “Everything in life depends on how that life accepts its limits.” -James Baldwin Hi friends, as all of you know with chronic illnesses such as ours, we can predi ... Read on »