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Kelly Patient Expert

San Francisco, California
Jenelle is 5 and suffers from a rare form of Epilepsy called Lennox Gastaut Syndrome. Please feel welcome to follow her journey with this devastating condition.
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Feb 11 2011 by Joelle M.

Hi Kelly,

I am the mother of a 7 year old boy, Patrick, who was very recently diagnosed with LGS (although we had suspected this for at least 2 years)  I am wondering if you know of a support group for LGS parents in the Bay Area.  We live in Danville.  It would be good to know how many other families in the bay area are dealing with the same issues.